It's after midnight here in Michigan, where I am visiting with friends and family. Surrounded daily by love and attention and support.
So why am I awake and crying?
Because for many months I've been hiding my health issues. Ok, maybe hiding isn't the best word. But since about ...oh, last year Christmas I've failed to mention to you - the people whom I tell EVERYTHING- that I've been sick.
So tonight I'm awake and crying because yet ANOTHER symptom has appeared in this long and exhausting road of "I'm getting old and my body sucks."
Tonight my mouth is covered in sores (sexy, I know...stay with me it gets sexier) after months of vomiting and several weeks of rectal bleeding.
Yes, I said rectal bleeding. And get used to it, because I'm going into more detail.
You see, back when I was *just* feeling sick and puking ocassionally, I didn't bother to see my doctor. After all, I'm a puker. Two glasses of wine? Puke. Nasty smell coming from the trash? Puke. Weather turns and it's cold and I don't have a jacket? Puke (I'm not kidding, the cold makes me puke).
Then this started happening more and more often. Sometimes just a gag. Sometimes just in the morning like I was pregnant or something (no, I'm not) and sometimes just over-all nausea with zero puke...I thought, huh, that's weird. Oh well.
And I went on with my normal life.
I saw many of you as I traveled, and threw up in your conference hall bathroom. I went out with many of you to dinner, and threw up in the restaurant's toilet. I even walked down some streets with some of you after a night of fun and drinks, and threw up in a trash can while you weren't looking.
For some reason, I thought this was fine. For some reason, I did not call my doctor. For some reason, life just went on.
Until...
I didn't see my doctor until one day I went to the bathroom and instead of pooping a blood clot came out. Then another. And then a few more.
Then the next day it happened again. And the next day...again.
Nothing can get you calling your doctor faster than blood coming from places it shouldn't.
It was 2 weeks before I could get an appointment, and the nice nurse said "well, you know, if it gets worse feel free to go to the ER..."
Uh, thanks.
Of course that doctor had to refer me to another doctor who had to refer me to one more. They ran the usual test. Blood work was fine. Urine was fine. And that's when you start to think YOU are the crazy one and maybe this all just is normal and life should just go on and you should quit your bitching.
Then finally we had a test that came back abnormal.
It was a fun one. The doctor stuck his hand up my ass- the rectal exam.
That test confirmed I was bleeding. It wasn't much to go on, but hey...at least we were getting somewhere.
From there I saw the Gastro doc, who looked at me and my chart and my tests and my symptoms for all of 3 minutes before ordering two rather invasive procedures. I didn't argue. When you are bleeding out your ass and feeling sick, you just don't argue.
Mind you, the soonest I get to have any of these tests done is August. Because nothing says "health care in the US sucks" like waiting 6-8 weeks for tests you could probably use yesterday.
As the weeks drag on and the tests are done and we wait for results...I still feel like crap. Of course, on again, off again feel like crap. Some days I'm puking, some I'm just quesy. Some days I'm bleeding a little, some days I'm not bleeding at all. Some days I feel fantastic and consider canceling all the tests ordered.
Then there are days like today. I just threw up in my cousin's bathroom, put canker sore medicine in 6 different spots in my mouth, and wiped my ass to find pink and red dots.
When I finished, throat raw, mouth numb, and ass hurting...I sat down on this bed and began to cry and write.
I cry because I'm tired, and I cry because I don't know what I'm dealing with. I cry because I'm afraid it's something simple, like an infection or some "stress" induced illness. I cry because I'm afraid it's something not so simple, like Celiacs or Crohn's or Cancer. But mostly...I cry because I'm really freaking tired of feeling like crap, and I'd like that to go away now...please.
Which leads me to why I am finally blogging about this...and why I hesitated to tell you.
First of all...do many people really want to say "Hey, so...guess what...I'm sick and bleeding out my ass!!!" to the entire world? Yeah, not so much. Also, I didn't know what to tell you. For all I know it's all in my head and I have a bad 'roid from pregnancy flared up and pissed off. Sarah knows what I mean, she recently blogged about having a colonoscopy and had the same hesitations I did,
"I've been having some strange digestive issues of late (last couple of years) and finally there's started to be a small (very small) amount of blood so the docs want to check it out (obviously). It's funny because no one ever talks about this subject, but once you open the door, everyone has some stories. How can one not laugh at it all though."
But as time marches on, and more and more tests are ordered, I realize it's been this community that tends to remind me I am not alone and that they too may have some information or knowledge to share.
Over at Post Cards from Yo Momma I found this gem:
"Dad took me to lunch afterwards. All in all, the procedure itself was a breeze. I just wish that bitch with the needle had told me how much it would burn. They did warn me I might feel light headed after the IV meds kicked in, but that turned out to be a sensation I found surprisingly enjoyable. I bet my hiney was the cutest one all day."
I bet my hiney is cute too!
I also bet it won't be the one shaking it's ass ontop of a table at BlogHer.
Yes, this means at BlogHer '09 in Chicago I won't need to hide. I won't try to quietly puke in the bathroom if I need too, and I won't need to explain to you why I may or may not be having that 2nd glass of wine. If I get up at lunch or dinner or breakfast and excuse myself I can actually say "I don't feel well" not "I have a phone call, let me take it outside." It will be nice to NOT hide.
Which means from here on out you get to join me in my journey. It might be too much to hear...I mean, really- who WANTS to know that much about my ass and my bowels? Or it may be just what was needed, because you too have had similar symptoms or you too know someone also undergoing some tests.
On August 4th I'll be sedated and doctors will drop a camera down my throat and into my stomach to look around.
On August 11th I'll be sedated and a colonoscopy will be performed.
And I'm going to tell you ALLLLL about it. From the prep to the diagnosis and all the whining and complaining I will do in between (because you know I will).
In a few weeks I will blog my endoscopy. Then I will blog the prep for my colonoscopy (which, dude...clear liquids, enemas, drinking gallons of some crappy mixture..all accounts indicate it's hell) and then the procedure itself.
By the end I hope to have some answers, and if not...at least I'll have you.
Other bloggers talking stomachs, butts, and gastro excitement:
Contributing Editor Erin Kotecki Vest also blogs at Queen of Spain blog
Comments
Talk about vulnerability
It's very brave of you to face this squarely with the whole world watching. I know your audience includes a lot of friends, but it also includes a lot of people -- like me -- you don't know at all.
I'm sorry you've been feeling unwell for so long, Erin, and I'm glad you finally sought help. It's a reminder to all of us that hiding our heads in the sand is not the best way to deal with things. I, too, have a tendency to discount health ailments, although I know at age 55, that's not wise. I've still not had my baseline colonoscopy, recommended by age 50, because I want to lose more weight first (!)
I know -- stupid.
Like all of us -- those you know and those you don't -- I'll be there when you relay your experiences and deal with whatever comes next. And I hope to see you at BlogHer next week.
BarbD
The Middle Way
Thanks Barb
You will see me there! I've been feeling well the past few days and I'm hoping it sticks!
Politics & News Contributing Editor
Queen of Spain
Hugs!
This is the bravest thing I have ever read.
I wonder if your doctor could give you an anti-nausea med for the conference, just so you feel better and can enjoy yourself? I took phenergan (spelled wrong, but that's the idea) when I had rotavirus, and it helped. They even have a transdermal one that is a lotion you put on the inside of your elbows (my daughter calls this place her "elbow pit"), so you could still have it in your system if you were puking. Give 'em a call - they work for you.
But if not, seriously, I will hold your hair and rub your back and give you a mint when you're done. You are so, so brave.
http://prettybabies.blogspot.com
Embarrassed
I'm not sure it's brave, but it sure is embarrassing. Which I've decided I'm just not going to be anymore.
Thanks.
Politics & News Contributing Editor
Queen of Spain
"Embarrassing" would be NOT doing the right
thing
Girl, we've all experienced stirrups. How is this so different?
Thanks for doing the right thing to take care of yourself -- on behalf of your kids, your family AND your friends. :)
Lisa Stone
BlogHer Co-founder
Surfette
BlogHer is non-partisan but our bloggers aren't! Follow our coverage of Politics & News.
hmmm
That begs the question, is one part of our lower half more embarrassing than the other???
Politics & News Contributing Editor
Queen of Spain
Hugs my friend
It's scary and it sucks and I wish I could make it better for you. Remember that even though the tests are scary they are going to help you. Once you know what's going on you'll know how to treat it.
Sassymonkey and Sassymonkey Reads.
Yes, I just want to KNOW what's up
A lot of people are saying colitis or crohn's or...one other who's name I can't remember. I keep thinking it's all in my head. Why do I do that? Anyway, thanks and yes, looking forward to knowing what's up.
Politics & News Contributing Editor
Queen of Spain
Yikes, scary, Erin ...
... glad you're finally getting in, getting help.
After getting off schedule for a couple of years, I've just scheduled several well-woman appts including a baseline colonoscopy -- prompted by a friend telling me about her sister who just kept putting off and putting off doctors' visits and died a horrible (and perhaps preventable) death.
Be thee well --
Alanna Kellogg
Kitchen Parade &
A Veggie Venture
Thanks Alanna
Waiting is the hardest part, for sure. And more people should be as pro-active as you!
Politics & News Contributing Editor
Queen of Spain
Thank you
There is nothing scarier than going through something like this alone! Good on you for a)getting it checked out, and b)allowing all of us to be here for you. I think the reason we think we're making it up is because we don't talk about these things. Only good can come from sharing your experience, both for us and you.
On another note, if you have any interest in approaching things from both an eastern and western perspective, let me know. I can help you find people who will assist with any dietary changes that might help, acupuncture, Reiki practitioners, etc. Sending you love and courage!
THanks Anna
And we really do need to talk about this stuff more. Maybe I would have said something sooner if we did?
Politics & News Contributing Editor
Queen of Spain
Thank you
There is nothing scarier than going through something like this alone! Good on you for a)getting it checked out, and b)allowing all of us to be here for you. I think the reason we think we're making it up is because we don't talk about these things. Only good can come from sharing your experience, both for us and you.
On another note, if you have any interest in approaching things from both an eastern and western perspective, let me know. I can help you find people who will assist with any dietary changes that might help, acupuncture, Reiki practitioners, etc. Sending you love and courage!
Cyber Hug!
Oh Erin,
Here's a cyber hug until I can give you the real thing next week.
I'm so sorry you're feeling so lousy. It's maddening, frustrating and you think it will never end.
Believe me I know from bleeding profusely (another story for another day) and it's way beyond scary.
I'm so glad you decided to talk about it so we can support you as much as we can.
Hang in there.
Megan
BlogHer Contributing Editor, TV/Online Video
Megan's Minute
Cant' wait for that hug Megan!
Yeah, the rest seemed 'acceptable'...the bleeding scares me.
Politics & News Contributing Editor
Queen of Spain
Thanks for your vulnerability
I have to say your post is one of the most honest and well-written things I've read in ages. Thanks for your honesty & vulnerability. Wish you much healing and humor (which you obviously have in buckets) along this journey.
What I can tell you from my endo/colonoscopy prep last year --- rita's ice (nothing blue, purple, etc.) you can eat in bucketloads and then never ever want italian ice again. And while prep day is somewhat miserable (who really wants to drink a glass of prep and spend hours sprinting to the bathroom)... in the end the process isn't too awful (a bit enlightening though with the laissez faire attitude of some of the medical professionals I ran into when I voiced a few fears and concerns... but guess that is because it's their everyday job so they think nothing of it).
Look forward to meeting you at the conference & reading your ongoing posts on this journey.
Paula Gregorowicz
The Paula G Company
http://www.thepaulagcompany.com
Thanks for the prep tips
Which flavor do I choose for that junk I have to drink? My luck, I'll pick the worst one!
Politics & News Contributing Editor
Queen of Spain
Choose Orange!
And mix the entire thing first, before adding water. Trying to sample each flavor with each glass is not the way to go. It doesn't mix well. It's definitely an un-fun day prepping but not terrible. The procedure was nothing -- I slept right through. And my prep nurse said some people tell her they mix Crystal Light in to the stuff. Good luck.
Orange it is!
Orange Orange Orange !Politics & News Contributing Editor
Queen of Spain
Just commented on your blog...
... but I wanted to pop in and say: good for you, for deciding to share this, and not be embarassed about it any longer! You don't need the additional stress of having to hide stuff. Unusual symptoms can create a lot of stress, and a long wait to find out what the heck is going on sure doesn't help. Waiting sucks. You should NOT have to wait when you need to find out quickly.
But now at least you won't have to wait alone. We'll be waiting with you, and I think I speak for a lot of people when I say I'm crossing my fingers for you, and hoping it's nothing major, but something manageable... and I'm still really looking forward to meeting you at BlogHer.
All the best! And hugs.
I'm not really sure WHY I hid
I'm thinking back to all the events I've been at and not telling anyone I didn't feel well, or getting sick...etc. I think it was just happening SO often I thought it would become a "oh, ERin's sick AGAIN" kinda thing. Who knows.
Looking forward to meeting you too.
Politics & News Contributing Editor
Queen of Spain
Brave & Honest
I appreciate you writing this because so many times I see people act as if everything is all good. Everyone has issues they are facing and no one's life is perfect. I am one who tends to self diagnose rather than head to the doctor right away so if anything, your story will move me to go get seen when something is out of place. But as a woman in the blogging spotlight, (you not me lol) I applaud you for telling us everything.
Mrs. Sowell
www.doingsowell.com
~Life is good and we are doing so well!~
Thanks Mrs. Sowell
I DID feel the need to show everyone my life was good and fine and NONmessy. I have no idea why we do that to ourselves. Politics & News Contributing Editor
Queen of Spain
Knowing, and sharing, really help!
This sounds so familiar! Believe me, as not-fun as the procedures are (the prep for the colonoscopy is definitely the worst part!), knowing the results helps. I went through this in late 1999 and early 2000. My diagnosis was ulcerative colititis, and while it took a while to get under control it has been in remission for years. I hope that it is something that can easily be treated or cured, and I think it's fantastic you are putting it out there as a shared experience. Good luck!
This prep is starting to scare me
Everyone is talking about how bad it is...eeep!
Politics & News Contributing Editor
Queen of Spain
In the midst of my empathy...
the writer in me is so in love with your spot-on title.
I am so sorry you've been feeling sick. When I was 18, I felt like I had a flaming brick in my stomach all the time. It hurt constantly. Because I kept saying "stomach," I had every horrible bowel test imaginable. Finally, they checked out my reproductive system, and after an endoscopy and cauterization for what turned out to be endometriosis, everything was fine.
Nothing to do with your story, except to say man, it sucks to have something wrong and know something is wrong and not know what it is. I'm glad you put it out there, though, so you can have the support of your tribe.
Rita Arens writes at Surrender Dorothy and BlogHer and is the editor of Sleep is for the Weak.
We're writer dorks
I was all patting myself on the back for the title too ;)
Yes, my tribe, our tribe, can rock it like no oter. I also hope maybe we wont' be so secretive about this stuff anymore. If I can yell 'HEY GUESS WHAT I AM BLEEDING OUT MY ASSS!!!!!!" anyone can
Politics & News Contributing Editor
Queen of Spain
Sharing can benefit us both
Hi Erin --
First, I'm sorry that you're going through this -- it's definitely draining to not only not feel well but to be in the dark about the cause.
It's different for everyone, but I think that sharing these stories can not only help you cope, but also opens the door for advice, support and encouragement from others who have been there -- but may not have known to share their experience otherwise. Also by sharing you're probably helping others out there who maybe need that extra push to get to the doctor and reach out for support as well. While I never like reading stories like this for the obvious reason, part of me enjoys seeing these posts because it, to me, is a level of taking charge of how *you* will work through this.
Caryn
twitter.com/caryn74
extra pushes are good
And you are totally right. While it does help me, I also hope it pushes someone else too!
Thanks
Politics & News Contributing Editor
Queen of Spain
You are an inspiration
Thank you for sharing yourself. I wish you all the best!
There are a TON of health bloggers here who you can lean on and who can offer remedies to ease your discomfort until you get your results.
Hope to hug you in Chicago ~ Your brave and selfless post is really an inspiration.
Best always!
Houseonahill
www.Houseonahillorg.blogspot.com