On Lupus and the Spoon Theory
Spoons from across the world arrived in my mailbox today.
It is hard for me to put into words what this means to me. Some of you are probably saying... spoons? Erin... what the hell?
Recently, FINALLY, after multiple surgeries (she lost 13in of her colon, her gall bladder, and her uterus, ovaries, and cervix) this year and so many emergency hospital stays, she received a diagnoses of Lupus.
One day on Twitter she spoke of 'grabbing all the spoons' she could because Lupus could #suckit. I had no idea what the heck she was talking about so I googled it.
Of course Megan posted about it too:
Let me ask you one little question: If you could do something to make a person feel better - a person you could otherwise not help in her situation of unfortunate circumstance beyond her or your control - would you?
Think about it. We've all been there. We've all had someone in our life - whether a close family member or friend or perhaps it's just someone we know through the blogosphere or Twitter world or maybe even it's someone whose story we heard from someone who heard it from someone else... but somehow, it touched us, it haunted us, it made us feel helpless and it kept us scratching our heads and wondering What can I do? leaving us helpless because sometimes, in this life, we don't always have the chance to fix things for others. No matter how badly we want to.
And the next thing I knew a package of beautiful spoons were at my door.
I thought I might laugh, or giggle, or maybe get misty eyed and tweet you all ... instead I sat at my dining room table, kids around me, and I cried that ugly cry, reserved for those moments in life.
It had been a bad day. It had been a hard day. I started the morning teaching my Mom how to give me a chemo injection and was sitting at that dining room table feeling defeated because I was exhausted from going to the hair salon.
Again... I'm not sure you understand what this means to me. The timing. The symbolism. The everything.
My son rubbing my back, my daughter playing with the brightly colored spoons. And me... sobbing at the table, looking at a dozen or so kitchen utensils as if they were the answer to all my questions.
I wasn't crying because I was sick. I wasn't crying because I was so happy and the tears of joy came out.
I was crying because I finally could.
After months of meals delivered to our door. Gifts. Visits. Virtual hugs, and the whole world reaching out to our little family just to check on us, I felt as though I could finally just let go.
Because I know you are there. These spoons tell me so. I can let go because you are there to pick me back up. I can let go because you have my back. I can finally let go because everything really WILL be ok if I let others help. If I let others lead. If I let my tired body heal and allow you to be in control. This is huge for me. This is not who I usually am. This is what needs to happen so I can tell Lupus to #suckit for good.
I have spoons.
I have everything.
And you have my very heartfelt thanks.
Social Media Strategist Erin Kotecki Vest