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I'm the BlogHer Contributing Editor on parenting children with special needs, and I'm at your service.  I am more than a parent, but with three...
 
 
 
 

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Staying Healthy: For Myself and for My Son

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I have to be strong to be Leo's mom. Both physically and mentally. Not just now, but forever. My son needs me to be healthy and have stamina -- because however intense his needs are now, he will need as much if not more support when he becomes a man, and I need to be able to take care of him. He's almost ten, nearing puberty, nearer to adulthood than not -- I need to take care of health factors over which I have control, so that I can be here for him as long as possible.

Taking responsibility for staying healthy sucks, honestly. It means coming up with a plan, and that means extra effort when I'm already cruising on effort fumes. Taking action to stay healthy means less free time when time is already scarce. And I don't want to even partially surrender my stress-relievers of choice -- sweets and reading -- though I know that overindulging in either is contraindicative to my physical health.

people bicycling

But I have to start taking care of myself. I've been lucky with my physical health so far, hitting 40 without chronic health issues beyond uneven sleep-deprivation skin and a waistline of unusual size (for me). The latter wouldn't normally chafe -- I'm cool with my body -- but, according to my doctor and the elevated cholesterol test results she recently chastised me about, my curves are becoming dangerous. It's time to straighten things out.

I also need scrutinize my mental health. Though I work hard to maintain a positive attitude, like many parents of kids with special needs, I am prone to deep funky depression. I self-medicate with adrenaline and overscheduling, because, hey, if I don't sit still, the sad won't have time to settle. But that approach is not exactly... healthy.

I need a plan, a road map, for both physical and mental health. Here's what I'm going to try, for starters. (I'd welcome any additional suggestions.)

  • More sleep. To be accomplished by saying "No," with increased frequency, and through choosing the pillow over TiVo, or that book I so desperately want to read (whimper).
  • More exercise. I've signed up for yoga, so there. And I'll step up the hiking with Leo. Also, if anyone wants to prod me, there's a hiking trail outside my back door -- want to be my weekly hiking buddy?
  • Less eating of the sweets. Via small choices: black coffee instead of lattes, only one small daily treat
  • Portion control mixed with variety. This is effective but will require planning. I am always amazed by how full I feel after one of Starbucks' egg/biscuit/grape/cheese packages, though it is free of nasty reduced-fat/sugar anything, and only packs 370 calories.
  • The effect of posture on attitude. Whenever I feel myself schlumping, physically or mentally, I roll back my shoulders and hold my head high -- and feel better almost immediately. When I'm out with Leo, these adjustments turn me into a proud confident autism mom. (I hate thinking my posture could be interpreted as an implicit apology for my son's presence.)
  • Ask for help if I need it. This could lead to progress on No. 1.

It also helps to know good role models. Laura Shumaker, a writer and autism parent, said in her book A Regular Guy that, when she found herself on the verge of a mental crisis as evidenced by panic attacks, she found herself a good psychologist -- one who both listened to her concerns and guided her towards action. Laura considered their weekly therapy sessions "healing." I am going to have to follow her self-aware example one of these days.

Susan Senator, another autism parent, has always taken good care of her physical health -- she's a belly dancer, runner, and cyclist. I once asked her how she fits all her activities in, given that she -- like Laura, like myself -- has two typical children in addition to her son with autism. Susan said she simply made exercise it a priority. I'm going to have to follow her example, as well.

I also spoke with another special needs mom, Sarah Oriel of Planet Josh Mom, about her experiences maintaining physical and mental health. (Sarah's son is an older version of Leo. She is also currently training to run a half marathon.) Here's what she said:

Even though I've always known on some level that my importance in Josh's life meant that I really needed to do my best to be around and healthy for as long as possible,

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Shannon Des Roches Rosa 5 pts

How it goes and what you're doing to take care of yourself, so we can learn too.

I hope you're getting those hugs, too. Thanks.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

Really appreciate your point on the non-linear grief cycling. I always get caught by surprise.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

And now you have to tell us what movie you watched...

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

mama_of_5 5 pts

hugggeee hugs to you love.
I am a Mama of 5, one of my lovely darlings being Autistic, and I must say she adds a dynamic to our family that I couldn't imagine not having. That being said, to get her to where she is Alot of things , including myself, has taken a back burner.
Your post has reminded me that I NEED to take care of me...and you need to take care of you.
Huge support love.

Judy Schwartz Haley 6 pts

yes, yes, yes, take care of yourselves. You never know when a new layer of complexity will be added to your lives. The stronger you are, the better you will be able to manage and overcome these obstacles.

Judy Schwartz Haley is currently battling breast cancer while raising her toddler daughter. She is also a full time college student, as is her husband. It's a lot to juggle, and she blogs about it all at CoffeeJitters.Net ( http://coffeejitters.net/blog ).

aitch 5 pts

We all need a reminder to remember to look after ourselves.

http://historyandshinythings.blogspot.com/

Jennifer Minnelli 5 pts

Your plan is a good one. I also recommend finding a therapist who specializes in family systems and Cognitive Behavioral Therapy. Here is an example of someone I know: www.kristinpaulig.com ( http://www.kristinpaulig.com ). Ronald Mah practices near the Bay area. A few years back, I literally went to Urgent Care and told the doc there that I was having an acute depressive episode (which I was). It pays to have a primary care doc who knows you and your family situation well enough to be able to prescribe meds. I was lucky that the urgent care doc believed me, prescribed something, and made me promise to find a regular doc to manage the outcome with the prescription. One thing that another amazing mom of an atypical child told me that I have always remembered is that, depending on how your child is doing, your grief process is never finite or linear. you cycle through denial, bargaining, acceptance, and back through them all again, sometimes in 1 day. And that puts a strain on your brain's ability to function normally, especially under conditions of transient sleep deprivation. You deserve the same good care that you give your children!
Jen

midnightbliss 5 pts

taking good care of our self for the people we love are the best gift we could give them.

Shannon Des Roches Rosa 5 pts

I am so sorry to hear about the health issues that are preventing you from operating in standard ass-kicking mode. Do you have sufficent backup at home? Let us know what we can do to help.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

I actually haven't been yet -- but I'm but I'm going tomorrow, it's now part of my schedule. What amazes me about yoga is how quickly my body re-acclimates, even if it's been years since my last session. Definitely the sport for me.

Portion control: the quickest, dirtiest approach is to use smaller bowls and plates.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

I'll be rooting for you! Thanks again for being so inspiring.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com/ ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org/ ) real tales of schoolyard terror and triumph

sandwiched 5 pts

I really needed to hear this this morning. Last night ended with me in tears (is it all just too much for me? Is the depression coming back?), and this morning I'm feeling under the weather and sluggish.

I have been walking every weekday morning for the last month or so, but it's raining today. Plus I don't feel good. Plus, my house is a mess, so surely I get a pass for that, right?

I've learned the hard way that I can't afford to put my own needs completely aside to focus on the ones I love. That's what my mom did for my whole life, and now she's lying in a hospital bed with lung cancer, kidney failure, and heart failure, including 15 stents and a freshly-installed pacemaker.

I'm not doing anyone any favors if I let her poor health drag me under the bus.

That's it! I'm grabbing that chick-flick DVD that DH won't watch with me and taking it to play while I'm on the elliptical.

Thanks for the good talking-to.

http://sandwiched.wordpress.com

daisymayfattypants 5 pts

My health is iffy at best, at all times. It's weird to type that because I've always been a kind of hard-charging, damnitall sort of healthy gal, even when I wasn't living a very healthy lifestyle. I could push through all energy drains with reserves I seemed to conjure out of nowhere. No more. Now I'm just tired, neurologically challenged, bombarded with one health bomb after another, affecting yet another body system, and I'm sick of it. While I'm not gaining weight, I worry about it because...well, first, there was my inability to walk like I used to. I used to be the one who passed you on the trail or sidewalk or stairs, going like the demons of hell were nipping at my heels. Now, I'm the one everyone else passes.

Except NOW, I'm not supposed to walk AT ALL until a chronic Achilles tendonitis--probably brought on by my neurological problems-gets taken care of. This kind of thing scares the hell out of me. That I could go from being an inveterate hiker and walker to someone who's not even supposed to walk and who can barely walk when I'm allowed...that freaks me out. And yes, it makes it VERY hard for me to keep up with any of my children, autistic or not, or to fit in any Me time when taking care of their needs now takes twice as long. As for their future or mine? I just try not to think about it. As I advise my middle son, who suffers from acquisitivity, do not look through the moment you have, trying to see what's coming next. Just live in what's now.

/End rant
Cheers! Emily

JennaHatfield 9 pts

I adore yoga. I struggle with portion control myself. Why is food so good?

Thanks for the reminder to take care of myself.

Contributing Editor Jenna Hatfield (@FireMom ( http://twitter.com/FireMom )) blogs at Stop, Drop and Blog ( http://stopdropandblog.com ) and The Chronicles of Munchkin Land ( http://thechroniclesofmunchkinland.com ). She is a freelance writer and newspaper photographer.

planetjoshmom 5 pts

Thank you for writing this, Shannon, and for including me here - hey, if I can get it together, ANYONE can :) And I'm walking the half-marathon (torn ACL for the loss... ) but, still kind of a big deal for me.

Important subject - our kids are going to need us for a long time.

http://planetjosh.squarespace.com

http://sarahndipity.onsugar.com