This past weekend marked an important step for my daughter and I. She went away for the weekend with family friends and I had to step back from being my daughter's caretaker.
She's had sleepovers before but this was different. She would be in another state without her parents for four days. She would be at Woodloch in Hawley, Pennsylvania, with family friends whom she considered as family so there was no reason for me to worry, yet I did.
"Rejoice always, pray without ceasing, give thanks in all circumstances; for this is the will of God for you." - 1 Thessalonians 5:16-18 Most parents take it for granted that their child runs when chased – but that was not my reality until recently. In fact, if I ran towards Luke chanting mischievously, “I’m going to get you!” Luke would just stand there. He greatly enjoyed it when I would lift him into the air and swing him around, but he was missing that a big part of the fun was in the chase. ...more
Roughly 11 years ago, my friend Bean and I found each other. The details of our early friendship are long and sordid and involve way more than anyone, other than the two of us, would find amusing. Just know that we had known each other for years, yet barely acknowledged one another, then one night, in the light of a full moon, we bonded over a single Zeppelin tune.Okay, I don’t know if that moon thing is true, but the way we connected…my mind sees it that way And, the Zeppelin thing? Totally happened....more
*Today's blog is by Keith Murphy, a retired NYC Firefighter who responded to the attacks on the World Trade Center on 9/11/01. He tells the story of how that day changed the trajectory of his life forever. "Hey Joanne. Do you want to know how we got Ruby?” “Sure I do!” replied Joanne. This is how the conversation between my oldest daughter Gretchen and her bus driver began just after she started Kindergarten last year....more
Today I have found myself reflecting on all the things that my husband (Stewart) does as my caregiver. He is an amazing person and I very blessed to have him in my life. We have been married 13 years now. ...more
Some days, you may want to scream to the world (or perhaps to just a few inhabitants of your world):“See!! Do you SEE!! what my life has become? Do you see?”Because all you can see are doors that close, people who leave and luck that brings bad. You’re drowning in your life.What if you could look beyond the sea of despair to the ocean of opportunities? What if you could see beyond what’s not working and into all that’s possible?...more
On November 25, 2009, the day before Thanksgiving I began my fight with Cancer. It seems like a lifetime ago when I was told that the mass that was removed from my breast was cancer. I was 41 years old and I had just gotten the hang of living life in my 40′s. It was shocking to say the least. I was fortunate that it was non-invasive and I required minimal treatment. But I was flabbergasted ten-months later when my Mom was diagnosed with invasive Breast Cancer at the age of 68....more
Survey after survey finds that when a family member needs care and their adult children take on the role, they're often woefully unprepared. Why is there so much surprise? The fact is that most people who are providing some or all of their parent's care are not trained nurses.
It's unrealistic to expect someone who's never cared for an elderly person or one with dementia to become a competent, nurturing caregiver with unlimited patience who knows about nutrition, medications, bathing, treatments, sleeping and every other aspect of daily life, not to mention all of the financial issues, appointments and housing issues....more
For the past two weeks I have been the Mom of a child in a wheelchair. Since Kyler broke his leg he has been in a full leg cast and uses a wheelchair. He will have the cast for at least six more weeks and then he will have a boot and possibly be in the wheelchair until Christmas. Having a child with a disability (albeit a temporary one) is diff...more