Our PANDAS story, part 2

Our PANDAS Story Part 1...more

Celebrities. And Down Syndrome. We're Just Like You.

Celebrities. We need gas. We need groceries. Our kids want to go to the park. We push them on the swings. Sure there are some divas, but a lot of celebrities are pretty down to earth. And it’s the same for families with Down syndrome.Celebrities. And Down syndrome. We’re just like you.We’re in line at Starbucks. You see us. We see you see us. We see the stare that lasts a half second too long. You look away. But you’ll look again. You have to. You have to be sure of what you’re seeing. Something at once familiar and new.Wait? Is that…?...more

Since She Had An Appointment

Since Carrie had to have a mental evolution today and it gave me a chance to check out WEEKEND AND COMPANY in Sandpoint....more

What Kinds of Therapies Actually Help Autistic Kids?

At two-and-a-half, my autistic son spoke more often than several other kids in his regional center-funded speech and language class. Two years later, several of those kids talked non-stop, whereas my son continued to speak only occasionally, and mostly kept his own counsel. We parents of those kids constantly compared notes, as parents of autistic kids often do, about the differences in our kids' speaking abilities. Which different therapies and interventions were our kids receiving? How did they make a difference, and why? ...more
The three paragraphs about ABA are very wrong. We sometimes focus on compliance because that's ...more

Take it Easy

4 Ways to Talk to a Child With Autism About Paris

The latest incident in France is bringing us all together as we have become a global village where the pain felt by millions is mirrored in the hearts and faces of its supporters across an ocean. The only thing harder than watching the destruction of innocent people is trying to explain to a child why someone would murder a person out of misplaced religious/political beliefs. Now try explaining that to a child with Autism....more
oKatniss That is why it is SO important we take these steps to get ahead of the fear which may ...more

Hat Day

It was DC’s first full day at camp this past summer. He has attended this camp since he was 5 years old. He loves it. Before he left the school system at age 21, he was able to attend 9 to 3 every day for 7 weeks each summer. Now that he has a “job”, he normally uses some of his allotted vacation time to attend for two weeks of the season.  He does and has always been able to attend the twice weekly after camp program....more

Life Purpose As Taught By a Child With Special Needs

Originally posted on  Bangor Daily News Blogs and I May Regret This. ...more

When You Feel Like It Is All Too Much

Sometimes there is nothing you can do.  The dog is dying.  Your husband is leaving.  Your kid is on drugs.  You have done everything that you can find in terms of advice on the internet.  You have asked all of your friends for advice and nothing has changed.  I personally know what that feels like. ...more

Going to the “Lie-ber-ary”

DC has support staff that comes to our house for a couple of hours each day. He has had this staff since somewhere around the age of 18. One or the other is there when he arrives home from his job and they stay until 5PM – a little bit after I get home from work. His staff is there of course because I am still at work when he gets home from his program but their specific purpose is support in life-skills and community activities....more