Do You Let Your Child Hug Just Anyone?

Do you have a child with Down Syndrome who just loves to hug -- everybody and anybody? Do you let them? Despite knowing it's a stereotype, Leah at Garden of Eagan sees the predisposition to hug as a danger for her children and yours. She has been teaching her kids that "hugs are for family, handshakes are for friends." How do you deal with this issue? ...more
@Rebecca Trotter Hi there! I didn't see this reply to now. Yes, I completely understand the ...more

"Why Don't Kids Like Me, Mom?"

Monday, after school, in a fit of frustration, my son declared, "I am sick of Fremont and Clarmar. Why can't I be anyone's best friend?" I paused, knowing he can be sensitive, knowing that he had a bad day/week/month, knowing that maybe it will be better tomorrow. "What happened?" "Well, sometimes it feels like the kids are mean. They don't really want to play with me. They don't want me on their team."...more
Thank you for sharing. I remember distinctly knowing that I did not fit in and not having anyone ...more

The Blessing and Curse of Technology

The advances in technology in recent years have been nothing short of a miracle for families who have children with special needs. Computers can give our kids a voice where they previously didn't have one. Certain apps can teach how to read, count, add, socialize, and so much more. They give parents a voice and a way to find other parents in the same situation. It's hard to imagine like with our kids now without technology.But then there is the other side. The side where I would love to take every iThing in this house and sell them on Ebay to the highest bidder....more

Roxy the... What?!

Meet Birdie's friend Roxy.See Roxy sit?  Sit, Roxy, sit....more

Do your kids call things "retarded"?

At Wired today, I'm tackling the R-word:It's Way Past Time to Stop Saying Things Are "Retarded"And all over the internet, in movies, and at the playground, people are still using “retarded” and “retard” in disparaging or eye-rolling ways. It’s time to stop. Way past time. I’ve heard some parents express a sense of helplessness over the subject — they don’t like that their kids say, “That is soooo retarded,” but the kids pick it up at school; what can you do?...more

...and then they told us our son is autistic.

After six months of waiting, the day arrived for our son PJ's evaluation with the Early Childhood Development Team at Children's Hospital of Philadelphia. The appointment was for 9am, which meant we had to get up, fed, dressed and over the bridge into Philly during the morning rush hour. When he had his evaluation for Early Intervention, I cleaned like a psychopath. In the same manner in which I prepared for his Early Intervention eval, I cleaned. But in this case, it was us, not the apartment!...more

The One To Ann (And Her Friends)

Ann Coulter. I have nothing nice to say about you, so I really try not to say anything at all. It is a value that one of the many people who helped raise me into a responsible adult imparted on me. I am not saying I'm perfect - far from it. But I know the difference between a little bit of snarky gossip and spouting off a mouthful of batshit crazy hate. You, Ms. C, tend to do a little too much of the latter. So today I'm going to tell you how I feel about you - and it isn't going to be nice. Normally when I see you pop up on television I am in the process of changing the channel....more

The importance of an advocate

The older I get, the more I realize you don't get very far in this world without some kind of help along the way. This is definitely true of this foundation. We wouldn't be standing here if you all didn't support us, and I would have no knowledge to pass on to any of you if we didn't get to know the people we have throughout our journey. And I don't think I we will ever go along to another IEP meeting for Sean ever again. We will always take an advocate with us. ...more

The Miraculously Fantastically Magical Sticker

Never-- and I mean NEVER-- underestimate the power of a sticker.No, that's not a typo.  I meant to write "sticker".  And by sticker, I do not mean "a pointy-ended object with which to poke at things".  The sticker to which I refer could more aptly be described as "cute, colorful, sticky-paper praise"....more

Revealing the Elephant in the Room

For the first year we knew my son had Sensory Processing Disorder, we didn’t exactly hide it but I didn’t talk about it publicly. Then, once I started letting friends know about it, I decided it was better to be honest than to try to hide the fact that we were facing SPD as a family....more