Rhymes With Duck When you have a child with echlolalia you learn to hold your breath! You pray that every adult he engages in conversation with is appropriate and not sarcastic. And you never swear in front of him. ...more
Galen is 3 years old. He doesn't know how to tell me that he's hungry. He doesn't know how to tell me what on his body hurts. He doesn't know how to tell me that he's sick.But, this week, he has started to tell me that he's Happy. And I cry happy tears EVERY TIME."Galen, are you Happy?" I'll ask.Sometimes, he goes back to doing whatever it is he's doing.Once in a while, I'll get his smiling face looking at me."Rah, I Happy."Just typing it out makes my heart burst....more
It is amazing, just amazing how much I love my daughter. I would really do anything in this world for her and that includes the fact that I will never stop searching for answers regarding her high functioning Autism/ADHD/Sensory Processing Disorder/Hyperlexia diagnosis....more
After taking the stage Friday morning, Ree looked nervously at the wide open stage space, hovering to one side, as she jokingly pleaded for her long time gal pals and BlogHer founders, to not leave her alone. Ree wasn’t afraid to appear vulnerable, telling us, “I am not a public speaker, folks,” and winning the audience over by publicly declaring her Spanx discomfort. At that very moment, I too sat squirming in Spanx, and I suspect Ree would have been overwhelmed by the show of Spanx solidarity, if only she had queried the audience.
Day Forty - Pain Hi Friends, Here we are… day forty? This is probably the hardest thing I have ever had to write. Forget probably… definitely… is the hardest thing I have ever had to write. But, in my promise to keep it honest… here goes: I saw Daniel briefly yesterday (and by briefly, I mean for a few hours, which isn’t nearly long enough for me at all). He was very, very awake. I walked into h...more
In the last two days, I've had two friends (not connected at all) say to me - in relation to our blog - "I had no idea you were going through any of this!"My reply: THAT IS EXACTLY THE POINT!That is exactly why we're doing this blog (and the accompanying videos, book, etc.)....more
I thought of this topic a few days ago. I was having a bad day with Mr.Meltdown and The Destructor. Definitely hard being a special needs parent at times. Toss in being irritated, cranky, and in pain (probably PMS now that I think about it) and I was ready to call it a day (and days)....more