Exactly one year ago, I took my daughter in for a routine heart checkup. She had a heart catheter procedure when she was an infant. We were told the results should last her a good ten years. Well, ten years turned into two, and we were told she would need an open heart surgery to fix it this time.
Let me start by saying that I can't prove I'm on the spectrum. I was diagnosed with a rare neurological disorder fifteen years ago, but after researching and reading blogs written by women on the spectrum, the characteristics are too similar to ignore. I suspect I was misdiagnosed. The official diagnosis doesn't really matter. ...more
f you follow me on Instagram (jwarrenauthor), then you might have seen my post this week about mom guilt. That was due to a parent teacher conference that I had via phone with my son’s preschool teacher. The conversation turned into a “Is he ready for Kindergarten?” bit with the teacher saying all sorts of comments such as: ...more
For me, Autism Awareness Day is a time of celebration. But I'm not celebrating that fact that my son was diagnosed with autism. That day was not one full of joy and happiness. Today I am not celebrating autism. Today I celebrate my son, Brandon. He works so hard every day to be self-sufficient, independent, and to communicate. ...more
I have thought and wondered how I could best start the month of April and Autism Awareness…Like many, it is something that I am acutely aware of on the proverbial 24/7 basis.Some people get a little sensitive or testy about this month. They have a preferred method of awareness spreading or not spreading, a particular symbol, or they think that it serves no purpose other than to sell blue light bulbs.Light it up…light it all up…the good, the bad and the difficult…...more
Today is April Fools’ Day and as I do every year, I try to explain to DC that others might be playing pranks on him at work or elsewhere. He does not understand pranks or jokes really, and I always worry that he will be upset if anyone tries to play a joke on him. I usually do this by yelling “Oh My, What is that on your head?” – when he checks his head, I say “I am only kidding, it was a joke” and he laughs. I do also say “April Fools”. I did this a few times this morning and he fell for it every time. He did also laugh every time when I told him it was a joke....more
April is “Autism Awareness Month.” I say that’s not enough. Parents of children with Autism are aware of the isolation that their children feel when they are mocked by their peers, and they are aware of the lack of sufficient resources to help their children thrive in schools. Adults with Autism are aware that many who claim to speak for the Autism community don’t actually ask Autistic people for their opinion. They are aware that many businesses refuse to give them a chance at meaningful employment....more