How One Little Bug Changed our Life....

On July 25, 2012 our son turned 5 years old.  Exciting day, right?!  Turning 5 is a milestone, soon he would start kindergarten and be a “real” big kid like his sister.  Little did we know that his 5th birthday would change our lives forever....more

Down the Rabbit Hole Again: Finding Support Without a Diagnosis

Each year as April and Autism Awareness month rolls around, I find myself in a strange position of wanting to write something about my family’s experience of dealing with a range of developmental and learning disorders. At the same time, I feel that I don’t really have the right. All three of our children have received special education services for a range of developmental and sensory issues since they were all babies. But not one of them has ever had the official autism diagnosis. ...more
lizzieflowers  thank you so much!  So glad to hear your so id doing well, thanks for much for ...more

Language Tips for Parents

  Speech and Language Ideas for Parents to try at Home...more

Flipping Off the Voice of Doubt in My Head

Philip is a terrible bird watcher. While the rest of the group advances along the path, my son plops down in the middle of the trail to play with rocks. ...more
BlogHer Oh, how beautiful! Kids teach us to never loose the sense of wonder.more

Introducing Special Needs to My Children

I grew up in public school in New York, which means that I came in contact with a full spectrum of students with varying levels of "special needs." I saw it all - everything from inclusion to honors students. My father holds public office in New York, my mother was a public school teacher for 15 years in the New York state school system and they are huge advocates of public school.  They feel this way because of the social, cultural, and economic "diverse education" that is prevalent in New York schools. I understand that not every state is like this....more

I know I shouldn't compare

This morning, a coworker and I were discussing our Easter activities with our families. I had shared with her my story and pictures of Philip hunting Easter eggs. My coworker then described how several of her young relatives took turns being, let us say, difficult. The gist of her story was that the three children took turns either being greedy, selfish or declaring the Easter egg hunt that she put on for them unfair....more

Why I hate autism awareness month

I have a child with autism. ...more

Down Syndrome and Alzheimer's

I ran across this article about the connection between white matter and cognitive health. But what really fascinated me was the part about how people with Down syndrome are at "extremely high risk" for developing Alzheimer's after 40.The researchers did a study using 3 groups:1. people with Down syndrome but no dementia2. people with Down syndrome and dementia3. a healthy control groupThey used MRIs to study the brains of all three gouprs and found that:...more

Who Is that Woman with My Son?

Who is that woman with my son? She just stands there as Philip messes up the craft. At this table, the public library has a project in which a coffee filter is supposed to be glued to the top of the green rectangle of construction paper to become a flower on a stem. Philip is gluing it in the middle! Wait, is she helping him do it wrong? Why didn’t she point out how the other kids are doing it the right way? She acts as if this gymnasium full of families won’t notice. ...more
hayes080505 That's wonderful that you could see the beauty in his artwork.more