Beneath the instruction to develop a sentence was a line that read: I like mouse. I gaped in awe.This three-word sentence in mix upper and lower case letters was conceptualized and penned solely by my youngest on his assignment sheet.For the first time since he attended Kindergarten, he did not ask me to read an instruction or spell a word while working on an assignment....more
I am OVER THE MOON about B’s progress in his big boy bed. It took a lot of time, patience, and late nights, but now I am at the point where I lay Brandon in his bed and he does not get out. I don’t have to go in his room at all to lay him back down. It’s been this way for at least a month now. It is so freeing. I’m honestly nervous to post this because update because I’m scared that I will jinx myself. All kids are unique in their progress, but these things WORKED for us! I am so proud of B! (Update Dec....more
I'm at Starbucks typing this blog post at the insistence of my husband, who saw a dark cloud settling over me and knew I needed some time alone. For most of this year, I've had a decently positive attitude about my son's autism diagnosis....more
Earlier this week I happened across this article in The Atlantic regarding the Family Medical Leave Act (FMLA) and its restrictions, particularly on how it defines family. The article details the case of Barbara Sapharas , whose brother became disabled in a workplace accident. He needed help caring for his children, and could not walk or drive....more
FRIDAY: President Obama signed the ABLE Act for people with disabilities into law. Now families who have children with disabilities will be able to save for college and other expenses in tax-deferred savings accounts.
Living alone in a big city can be dangerous no matter whether you are a man or a woman, more so if you are a woman. There is an increasing crime rate report even in the safest of cities. Crimes associated with a woman living alone can be more dangerous than robbery and scams....more
I’ve seen a lot of chatter recently about cell phones, and the call to action for parents to get off their phones, as quality time with their kids is a blur around them. It’s funny, there are so many things that being a special needs parent changes. When asked to think of something of the top of my head, I always pause. Maybe it’s just because there are so many, it’s hard to know where to start. How about this. Just name something you do with your kid, and I’ll tell you how it’s different for me…how it requires accommodations, extra planning, or all-together av...more
There was a time when my son melted down every day, more than once a day. I woke up anticipating and dreading it. I stayed awake half the night dealing with it. And every single time I met someone with any experience in autism and sensory issues, I asked the same question - "What do I do when he melts down?" I asked our first OT who recommended diet changes. When we eliminated gluten and dairy, we had more meltdowns. I asked a parent who also has a child on the spectrum. She told me she never has to deal with anything violent with her son....more
How to explain holidays to kids? A tree just appears in the house, and we put lights on it? Really? Not long after tackling the turkey theme, presents gather under trees, candles are lit, and confetti thrown in the air. For my son, a nine-year old who cognitively understands the world like a five or six year-old, the holidays must seem like a non-ending party. Explaining our behavior presents an interesting task.