What I have learned in my 34 years.

What I have learned in my 34 years…… I am only 34, I don’t have 70 years of life behind me to push my advice. What I do have is 34 years of a lot of living, a lot of traveling, a lot of mistakes made and a lot of learning from them. So with tongue firmly planted in cheek I am sharing what I have learned in this life.-If you cannot laugh at yourself then you are missing out on a wonderful part of life. Everyone else will laugh at you from time to time, might as well own it....more

2014; A year of heartbreak, liars, stress, terror and what every year will be measured against.

2014; a year of heartbreak, fear, stress, liars and what every other year will be measured against....more

But does he know……

I’ve been asked quite a few times –  twice just this past week, if I have ever told DC that he has autism and if so how did I approach the subject. Most of the questions came from mothers with children that are just beginning to or do already realize that they are different from their classmates and friends....more

Raise your hand if your kids are spoiled? Keep it there if you want to change that!

Tell me if you have been here before:“Mom, I wanna go here and do this”(which costs way too much money for a boredom/wasting time thing to do)Saying “no” invokes whining and nagging for hours but there has to be a line right? We can’t afford all the toys/entertainment in the world.Saying “yes” means giving into something your child doesn’t need to make them happy for a moment and make you the hero for an even smaller moment....more

Who Cares? A Medical Challenge for People with Disabilities

Wondering where our children end up, who will care for them, and how is a special concern for parents of children and adults with disabilities. The growing problem of finding health service professionals looms large for many as they struggle to find doctors and clinics accepting adults with special needs. ...more

"Describe Your Child in 200 Words or Less" (From Archives - June 14, 2013)

I’m sitting here once again trying to fill out a form to describe my son, one of the hundreds of forms I’ve had to fill out over the last 22 years. It doesn’t get easier. This particular form is for the Police and Fire Department for a program that keeps information on file about the special needs children in town so if they wander, become lost or if some emergency happens in the home, the police and fire departments have pertinent information on our children, their disability, how to manage the situation, what makes them anxious, what calms them down, where they might go, etc....more

Flapping and Blessing

My family was 45 minutes early for my doctor’s appointment. It was a little over five in the afternoon.We walked around the mall where the optometrist’s office was located to kill some time. On our way down to the ground floor, my youngest saw the slow-moving train packed with giggly kids stationed between the elevator and the escalators....more
Cece Harbor Thank you for the kind words. Indeed, kids with special needs have a unique way of ...more

Disability? My Son will have None of That

My son embraces life. The word disability means nothing to him. He sees every moment as one to be captured. He doesn't know he is different. The task of guiding him, managing his challenges, and helping him keep up a regular existence is a balancing act. Yet, there can be no other way. Pity and sadness for him cannot be a part of our lexicon. He's expected to be the captain of his own ship....more

The Christmas Vacation Dilemma

A few days before Christmas, I read a post from another favorite blogger of mine, Mother O’ Jim, titled “When Delaying is Enhancing…” . The blog was about her son’s Christmas anxiety over a gift he knew he was going to receive (give it a read if you have a minute) and the steps taken to minimize his anxiety....more