Love never fails."It always protects, always trusts, always hopes, always perseveres."1 Corinthians 13:7I've been thinking a lot about who I am as a mother. Am I a good one? Do I do enough? Most of the time I think I am and I do, but every once in a while......more
Instead of a burden, raising a child with special needs is a blessing. Pregnant with my second child, I knew something was different. Not one single test showed signs of Down syndrome. But, something was different. "Your son has Down syndrome," the doctor said.
"How do you know?" I asked as I stared at the beige rectangular ceiling. Was this a blessing? Or a curse? Was this good? Or was this bad? Why did I want to cry at the birth of my son? Jammed. The words, the feelings escaped me. .
As I was searching for facts and information about autism, I became painfully aware of how dismal and depressing of a portrait most well known autism websites paint of what life is supposedly like for families affected by autism....more
This illness has been a blessing in disguise - It is my opinion that no parent should ever say this about their child’s illness, at least not in their child’s presence anyway.There are absolutely no blessing in my daughter, Bethany, having had a brain tumor nor are there any blessings in the disabilities she has acquired from complications during the surgery required to remove it....more
My friend Peg and I have often discussed just how fantastic it would be if we could just get inside our kids’ head for five minutes! That is all we wanted, 5 minutes…. 5 minutes just to see what is really going on in there.We never really know, we may think we do, but we really, really don’t.As much as I think I know my son like the back of my hand, there are still times when I realize I do not know anything at all....more
My eight-year-old son Jack is starting therapy soon to address the post-traumatic stress issues that are causing us all concern now that he has finished treatment for cancer. The short term goal is to address the needle phobia associated with it, which is more accurately described as a “lab-induced panic spiral,” but ultimately he has a LOT of anxiety that controls him and if we could ease that even a little bit, I’ll consider it a WIN....more
Having a daughter with multiple disabilities, I am always interested in seeing how my state ranks in services for the disabled compared to others.It's easy to find this information thanks to the United Cerebral Palsy Organization who researches and compiles a list ranking each state for how good its services for the disabled are. ...more
There is always so much talk about how Mom’s need to care for themselves so that they are able to care for their children. When you Google “Secrets of a Happy Mom” you come up with everything ranging from new moms to moms of teenagers, and all the ways one can find happiness in those roles of parenting.They all have a common theme running through. Mom’s need personal time, exercise, time alone with a husband or significant other, etc. to be a whole person before anything else. ...more
d.a.marulloI wasn't expecting to have a child, definitely not a child with special needs. But I did, indeed, have a beautiful little girl with Down Syndrome. That was 12 years ago. Today I write about her and how to deal, everyday, in a world that doesn't understand. I teach, I advocate, I survive while caring for a child in a world that needs more advocates and more understanding. Parents who deal everyday have stories that need telling. Stories about love, dedication and survival. We can teach while we do and do while we teach....more