Mother’s Day and The Macaroni Necklace

My only Mother’s Day gift wish when DC was little was a macaroni necklace. You know, the macaroni necklace that every child makes for their mother eventually, for some occasion or holiday or for no reason at all. I think I remember making a few of my own when I was a kid. I really wanted a macaroni necklace! Unfortunately,  there was no one that was going to help him do this, with the exception of me, of course,  but that would not be the same....more

A Legacy of Love

Love never fails."It always protects, always trusts, always hopes, always perseveres."1 Corinthians 13:7I've been thinking a lot about who I am as a mother. Am I a good one? Do I do enough? Most of the time I think I am and I do, but every once in a while......more

Burdens to Blessings: Turning the Tough into Trophies

Instead of a burden, raising a child with special needs is a blessing. Pregnant with my second child, I knew something was different. Not one single test showed signs of Down syndrome. But, something was different. "Your son has Down syndrome," the doctor said. "How do you know?" I asked as I stared at the beige rectangular ceiling. Was this a blessing? Or a curse? Was this good? Or was this bad? Why did I want to cry at the birth of my son? Jammed. The words, the feelings escaped me. . ...more

What I Want the World to Know About Autism

As I was searching for facts and information about autism, I became painfully aware of how dismal and depressing of a portrait most well known autism websites paint of what life is supposedly like for families affected by autism....more

5 Things This Special Needs Mom Will Never Say

 This illness has been a blessing in disguise - It is my opinion that no parent should ever say this about their child’s illness, at least not in their child’s presence anyway.There are absolutely no blessing in my daughter, Bethany, having had a brain tumor nor are there any blessings in the disabilities she has acquired from complications during the surgery required to remove it....more

The things we know…. and the things we don’t

My friend Peg and I have often discussed just how fantastic it would be if we could just get inside our kids’ head for five minutes! That is all we wanted, 5 minutes…. 5 minutes just to see what is really going on in there.We never really know, we may think we do, but we really, really don’t.As much as I think I know my son like the back of my hand, there are still times when I realize I do not know anything at all....more

Reconstructing The Past

My eight-year-old son Jack is starting therapy soon to address the post-traumatic stress issues that are causing us all concern now that he has finished treatment for cancer. The short term goal is to address the  needle phobia associated with it, which is more accurately described as a “lab-induced panic spiral,” but ultimately he has a LOT of anxiety that controls him and if we could ease that even a little bit, I’ll consider it a WIN....more

Top 5 States With the Best Services for the Disabled.

Having a daughter with multiple disabilities, I am always interested in seeing how my state ranks in services for the disabled compared to others.It's easy to find this information thanks to the United Cerebral Palsy Organization who researches and compiles a list ranking each state for how good its services for the disabled are. ...more

Caregivers For Special Kids

There is always so much talk about how Mom’s need to care for themselves so that they are able to care for their children.  When you Google “Secrets of a Happy Mom” you come up with everything ranging from new moms to moms of teenagers, and all the ways one can find happiness in those roles of parenting.They all have a common theme running through.  Mom’s need personal time, exercise, time alone with a husband or significant other, etc. to be a whole person before anything else.  ...more