telethon,helping to fin cures for rare diseases

Like very first weekend in december,a 30 hours marathon on the TV help to raise money fo people with rare,genetic ,progressive and severely disabling illness to find cures and help people and their families with these diseases.

27 years ago a few families got together to create AFM(french association against muscular distrophy)to help their children suffering from genetic diseases,as the year s go by they manage to find genes responsible of some of theses illnesses,beginning some trials on humans,make big progress to know some of these illnesses.

afm-telethon.com

You can find all the informations and more about all the researches and trials,... about this association on the above site which is written in english and you will also have the possibilities to contact them and help them by donating.

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