There's A Fine Line.... and Football

There’s a fine line between hope and fear, fantasy and reality, worry and obsession when you have a child with chronic illness. Keeping your feelings in check, and your perspective clear can feel like walking a tightrope. Swaying just a bit to one side or the other can throw off the balance, and that can spell disaster.

tightrope

Yesterday, we talked about the importance of hope and winning over worry, but TOO much faith and hope can cause you to put on the blinders and avoid seeing the entire (perhaps unpleasant) situation.

Take our recent bout of the stomach flu for example.

My son had a VERY good week on the mew medication- the one that is unproven in children, the one that warns of possible serious side effects including tears or ruptures in the digestive tract. It is a fast acting drug, so we knew that side effects could come on quickly as well. By the end of the week, he was doubled over with stomach pain, barely able to move, and that was just one of the issues he was having. I HOPED it was just a stomach bug, but that little voice inside my head told me to be careful, not to wish so hard that I would overlook a potentially serious issue. I couldn’t let my “positive thinking” color my judgement, or let myself just “will” it away. It was the middle of the night, so going to the doc wasn’t an option, and he wasn’t really bad enough for a trip to the ER, so I walked that fine line. I watched him closely for the rest of the night,  hoping that it was just a virus (we had been to a ton of clinics over the last week, so his picking something up was a real possibility) but also watching for any other indication that things were getting worse, or that it could be the more serious, medication related side effect. I kept neutral, balancing the hope and dread, waiting for the answer to be revealed. I didn’t jump to conclusions, but I recognized the possibility. Its a very, very fine line.

It was just a stomach flu. We were all relieved, and glad that I didn’t overreact or read too much into the situation. My son could relax and leave the worry to me, since he knew that I WAS watching him for any sudden changes, and that I wasn’t overlooking the potential for something more serious to crop up. I was the tightrope walker that day so he didn’t have to be, but I can’t always do it for him.

The longer we have lived with this disease as a family, the more I realize that it  requires us to walk a number of “fine lines,” and while I may be walking mine, I am coaching my son to walk his.

fine line

I’m helping my son find his balance between hopes and reality, between dreams and plans. Juvenile arthritis plays a big role in this. He walks his own “fine lines” while planning for his future. We know he could never serve in the armed forces because his condition is a physical exemption. Dreaming of becoming an air force pilot would be a pipe dream, so I don’t encourage anything that we know is completely outside the realm of possibility. What about his dream to play in the NFL though? Well, there’s a fine line.

He managed to earn a spot on his youth football team the same year he started chemo treatments. Despite the challenges, pure determination along with his God-given talent won out, and he (and his team) made it all the way to the National Championship quarter-finals.

That is a HUGE accomplishment, but it IS youth football. He would love to put all his eggs in this basket, to bank on a career in professional sports, just like his dad. But is that really doable? Do I squash these dreams with a healthy dose of reality? Do I encourage him to pursue it at all costs? There’s that fine line again, for both of us.

One thing that chronic illness has taught us is to be flexible. It’s also taught us to be creative, and look at things from a number of angles. So this is what I have done:

1) I continue to encourage him to train within the limits and stipulations given by his rheumatologist. If he isn’t allowed to play this season, we utilize the extra time for more types and more frequent physical therapy and conditioning sessions, so that he will be ready when he gets the ok.

Recent Posts by klpmiller

Comments

In order to comment on BlogHer.com, you'll need to be logged in. You'll be given the option to log in or create an account when you publish your comment. If you do not log in or create an account, your comment will not be displayed.