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I am the creator and editor of the website {a mom's view of ADHD}, where I and a group of moms and consultants write candidly about the everyday...
 
 
 
 

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The Stigma of ADHD and Our Kids

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Forgive my rant, but there is something really troubling me. Since realizing my son has a learning disability of some sort back in September 2008, I have been fired up about learning disabilities and how many children are crying out for help and are being overlooked. While I am still fired up about learning disabilities, I am obsessed with ADHD since my son's diagnosis of the disorder in November 2008.

UpwardAmazingly, after just a few short months, I was ready to announce his disability from the roof tops. I am not embarrassed or ashamed that my son has ADHD -- as society has taught me to be. In fact, I am now appalled when I run across a parent who feels their child's ADHD should be a closely-held family secret. I just want to smack them right across the back of the head -- this attitude does nothing to secure the health and happiness of the child.

Remember when you were about to give birth (or adopt) and everyone asked you what you wanted? What they were really asking was if you hoped for a boy or a girl, but you likely answered, "as long as it's healthy and happy, I don't care." Remember the "healthy and happy part?" Keeping your child's ADHD a secret is working against the one thing you hoped for your child before they were even a presence in your family.

You see, the more people who know about your child's ADHD, the more people that can do something to help your child. Even if it's just an extra word of encouragement or praise. By being open about their ADHD, we are not asking that our children be treated differently and we are certainly not asking for pity. We are asking that they are educated in a manner in which they learn best. We are asking for a hand up, not a hand out. We are asking that they aren't punished for behaviors they can't control. We are asking that they be judged and remembered for their talents and achievements, not their deficiencies or disability. We are asking that their spirit be lifted. We are asking that they can live their lives without shame. For teaching them to be shameful of their ADHD teaches them that you are ashamed of them. You aren't ashamed of your child, are you?

Our duty as mothers of children with ADHD, our duty to our ADHD children, is to speak out about ADHD and educate our communities and the breadth of society. Be involved in the ADHD community. Reach out to other parents of children with ADHD. Shout from the roof tops that your child has ADHD and you are proud of them and their achievements.

This is my mantra:

  • I choose to see my son's ADHD as a blessing, for he has always been a blessing in my life.
  • I choose to focus on his successes, not his failures.
  • I choose to be open about my son's ADHD and accept kindness, support, and services from all who can enrich his life and ensure his happiness.
  • I choose to release stress from our lives and go with the ADHD flow.

Won't you join me? We can make a difference for our children.

Penny Williams is the creator and editor of {a mom's view of ADHD}, where she and a group of moms write candidly about the challenges and joys of parenting a child with ADHD. 

Photo Credit: llimaorosa.

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Granny Nanny 5 pts

Thanks for your post - it will help lots of parents as well as their children. The story I'm about to tell proves your point.

Growing up in the 1950's, personal information was closely guarded - secrecy was the watchword and my parents, believing they were doing the right thing, subscribed to that philosophy. They thought they were protecting their child.

As a double footling breech, my sister was brain injured during her birth. Sensing my parents' reluctance to talk about it, I didn't know what was wrong with her until I was 16 and had the nerve to ask. To this day, at age 60, she doesn't know the cause of her handicaps.

This family secret has resulted in some sad consequences. Where my sister should have been compensated for life, she is now in serious debt; where she would have had more confidence, she is sadly withdrawn and morbidly obese; and where she should have received a more extensive education, she didn't get past seventh grade.

As my mother reached old age, I tried to convince her to let me take control of what money would be left to my sister. She refused, saying it would hurt her feelings. Now, because of my sister's propensity for impulsive buying, she has gone through her inheritance and is $10,000 in debt. I have now been forced to take control (hurt feelings aside) by seeking a credit counselor and convincing her to let me handle her monitary affairs.

I truly believe that my sister's life would have been more productive and satisfying if my parents had come to terms with the need to get the truth out. That's why the message in your post is so important. Thanks again.

adhdmomma 5 pts

Educating is the goal. Even my son's teachers (special ed included) don't really understand him. I want everyone to understand ADHD.

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

I love to hear ADHD success stories -- they are an inspiration to me in raising my young son. I bet your son will soar in the "real world" once he gets used to his wings!

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

That school sounds fantastic -- I wish we had something like it here. You are making wonderful progress for your son. Keep up the great work!

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

jelyn 5 pts

Let's do that. Our children whatever their differences is ours to nourish.

Love can conquer anything.

www.emergencyseedbank.com ( http://www.emergencyseedbank.com )

michelle212 5 pts

I couldn't have said it better! My son is 9 and I did try to hide his ADHD early on. I finally realized it is as much a part of him as his freckles are. Those who haven't had to deal with it don't understand and hopefully pieces such as yours will help to enlighten them.

thewritingmother 5 pts

I think the same way. I don't see ADHD as a sign my son is broken in some way.

~*~*~*~*~*~*~*~*~*~*~*~*
www.heather-cook.com
www.redwritinghood.ca
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Nobody wants to be Ethel 5 pts

My son has ADD. He is about to graduate from college with an engineering degree. It has been a long struggle for him and for us to get to this point. It has brought out the best and worst in our family for the past 8-10 years. I pray for his social integration into the world because discipline and reading social situations are difficult for him. I pray for you and your son and all parents with children with ADD and ADHD. I think there should be programs specifically to address how to educate and provide behavior modification because the education system is broken and can't accomodate anything outside of the black lines. My son was lucky to have tutors and some special teachers who helped him along the way. BUT the social piece was way harder and he still struggles with. God Bless you and your son. Keep fighting.

The Patty Beat can be found at  http://pattyabr.wordpress.com ( http://pattyabr.wordpress.com/ ) where The Fearless Cook resides ready to take on your most feared items in the kitchen.

colleen decker 5 pts

Dear Penny, You said it all!!! Kudos to you! Thank you for the rant. My son has ADHD too. We have been through years of negativity from so many people over our son and his diagnosis. We were blessed last summer to find a wonderful private school that he is now attending that teaches entirely differently.They cater to children with learning disabilities. Wouldn't you know it, he is actually doing quite well now!This school focuses on the positives not the negatives. They reward the children frequently but, also teach them to prepare for the real world in society by teaching social skills as well. I want to commend you for telling it like it is. Our kids are very bright and can be successful with the proper guidance. We have no reason to be secretive about ADHD. The more people that know, the more our children are given the tools to be successful in their lives! Thank you again for the rant!:)

adhdmomma 5 pts

Thanks. I hope to bring more of it to BlogHer in the future! :-)

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

Thanks! Haven't heard of Williams Syndrome before but I'm going to visit your link and learn a bit about it.

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

Right back at ya, Pamela!

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

I {heart} your therapist's analogy:
"Can you ask your heart to change the way it beats? Well, children with ADHD can't ask their brain to stop their symptoms."

I am soooo going to use that the next time an adult give Luke a glaring stare. Just the other day we were in the mall (big mistake, I know) and Luke was bouncing around so erratically his feet really hardly touched the floor. He bounced in front of a lady (who looked like she thought too much of herself in the first place) and she stopped and turned around and pierced him with this wicked stare that read like she wanted to kill him. I turned to my husband and told him I had to approach that lady and give her what-for. Of course, I stopped and took a few deep breaths and decided to be the bigger person, but I so very much wanted to educate her, in a drill sergeant at boot camp sort of way.

This analogy would have been great in that situation, had it been confrontational.

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

That's my first "bra-fricken-vo!" Thanks!

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

adhdmomma 5 pts

Thanks Kara! I do work hard to try to stay positive.

Penny Williams is the creator and editor of {a mom's view of ADHD} ( http://amomsviewofadhd.com ), where she and a group of moms write candidily about the challenges and joys of parenting a child with ADHD. 

Pamela Fagan Hutchins 5 pts

Way to go, Penny! You're an inspiration.

Pamela F. Hutchins

Blog: Road to Joy ( http://pamelahutchins.com )

pamela@pamelahutchins.com ( http://www.blogher.com/pamela@pamelahutchins.com )

JennaHatfield 9 pts

I love your attitude and your chutzpah. Keep it up!

Family Section Editor Jenna Hatfield (@FireMom ( http://twitter.com/FireMom )) blogs at Stop, Drop and Blog ( http://stopdropandblog.com ) and The Chronicles of Munchkin Land ( http://thechroniclesofmunchkinland.com ). She is a freelance writer and photographer.

babyjandbean 5 pts

I wholeheartedly agree with your post. My youngest has Williams Syndrome. Typically, kids with WS also have ADHD but he's too young to know now... Anyway, I think awareness and transparency with any disability or challenge is key to gaining understanding and acceptance. Thanks for your post!

--------

Loving life with my two charming sond - a spirited three-year-old and a young toddler living with Williams Syndrome - and blogging about it here ( http://www.babyjandbean.blogspot.com ).<

Milestonemom 5 pts

Hi Penny,
Congrats on speaking up. I have been fired up since I read all the negative comments posted regarding a news article on a shortage of ADHD meds - Adderall and Ritalin. One woman actually said that all the medications for ADHD shoud dry up and disappear so that parents would have to learn how to handle their kids. The stupidity of a comment like that from an evidently educated person (grammar and writing suggested good ed) made me see red.

My son's therapist (my 6 year old is ADHD combined type) made an astute comment. She said, and I'm paraphrasing, that people who don't know better seem to think that kids with ADHD can control their brain so they can do better. They don't understand that the brain is like any other organ. Can you ask your heart to change the way it beats? Well, children with ADHD can't ask their brain to stop their symptoms. Parents can't make their kids stop being hyperactive. Lord knows, I have more than 16 years experience as a pediatric therapist, and when my son is bouncing off the walls, nothing can stop him.I can't despite my experience. And my son is not badly behaved. He is just in perpetual motion and it gets in the way of everything.

Like you, I tell people about my son's ADHD. It serves his interests for me to do so. I need teachers and coaches and all others who come in contact with him to recognize that he is a wonderful boy who needs understanding but not pity. If he fails, it is not his failure. Rather it is the failure of the teacher or coach who lacks the insight and skill to deal with an atypical learner. And I believe that if any child with ADHD does not flourish, it is the system that failed and not the child.

You go get 'em Penny. I am right there beside you!

Nancy Konigsberg is a pediatric occupational therapist specialing in child development ( http://www.milestonemom.com ) and baby milestones.  She has a blog called Milestone Mom ( http://www.milestonemom.com )

state17 5 pts

Love the part about kids needing a hand up not a hand out. I've got one with SPD and one with a stuttering problem and we opening discuss it with anyone who will listen. I like what the Brain Balance website has to say about setting kids up for success and helping them reach their full potential, whatever that may be. Here is a link to their site for those interested...
www.brainbalancecenters.com ( http://www.brainbalancecenters.com )

CatbTan 5 pts

http://www.breakfasttobed.com

As an adult with ADHD and someone who has struggled with it their whole life. Bra-fricken-vo. Secrecy only serves to add to the stigma and shame that a lot of us have dealt with.

thompkara 5 pts

I think what I liked most about this piece is that it is NOT bitter, it is hopeful and inspiring. Your son is lucky to have such a wonderful parent!

kimmywizzie 5 pts

People are so judgmental as it is. If you don't tell them something is wrong, they will assume your child is a brat, or you are a bad parent.
They will probably assume that anyway. People who have never dealt with ADHD on a primary basis tend to think it's not a real disorder.
I will never hide the fact my son has ADHD.