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If you want to learn more about me, read my blog, Beth's Blog. Beth Kanter is a nonprofit technology consultant working with nonprofits organizatio...
 
 
 
 

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What do you think are some of the best examples of the wisdom of patients in healthcare and social media?

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Add A Purple Ribbon To Your Blog and Raise $10 for Alzheimer's Association

A few weeks ago, I did some research of nonprofits, health care and social media for a workshop presentation.  I was particularly interested in seeing how the "wisdom of patients"  manifested itself - for health care advocacy, fundraising, or patient support and education.

I found many examples of excellent patient blogs including, Susan Reynold's blog, Boobs on Ice and Amy Tenderich's Diabetes Mine

I'd like to share two new social media and health care social-media infused campaigns that have recently launched.

The first is an easy way -- as easy as cut and paste --  to raise money for the Alzheimer's Association that won't cost you a cent.  Simply add that purple ribbon to your blog and it won't cost you anything either.

Caring.com has partnered with the Alzheimer's Association to launch the Caring-Alzheimer's Association ribbon campaign. Caring.com is donating $10 to the association for each purple ribbon posted on a site or blog, with a $10,000 total goal.

You can pick one of two messages for your ribbon and personalize it to honor a specific person.  To find out more, visit Alzheimer's Association's advocacy website, www.actionalz.com.

Not too long ago, the American Cancer Society launched its "SharingHope.TV, an online community for people who are passionate about the fight against cancer and who enjoy creating or sharing digital content.   So, it's only appropriate that The American Cancer Society has just launched its first ever User Generated Content Contest.  They are inviting people to enter video in any of these categories:

· Crazy, Zany, Wacky Things I See at Relay
· Why I Fight Back
· My Relay “Recruitment” Video
· Making Your Relay Meeting Fun

You can find the contest rules here.

What do you think are some of the best examples of the "wisdom of patients" in user-generated content, blogs, or personal fundraising campaigns?

Beth Kanter, BlogHer CE for NGOS and Social Change, writes Beth's Blog.

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Silja 5 pts

Dear Beth,

thanks for this great post. I have been fascinated by the "patient wisdom" generated on the web for a while and I believe it raises many very interesting questions. It has been predicted already for a long time that the patient will be more and more empowered and take part in the decision making process within the healthcare system. Well I guess, on the web, we are already there now! I am just in complete and utter admiration for the strength, the wisdom and the knowledge about their disease that theses patient bloggers exhibit.

You asked about other examples of powerful patient blogs. The one that got me completely hooked is called "confessions of a CF husband" http://cfhusband.blogspot.com/

In this blog, Nate is writing about his wife Tricia, a CF survivor, transplant receiver and now mother to their newborn child Gwyneth- it will send shivers down your spine and make you laugh and cry!