Most Popular

What I thought I knew

  • Share This Post
  • Pin It
  • 9
  • Sparkle (
    )
     

I have been a teacher for ten years now, and in that time I have attended many special education meetings for my students, so many, in fact, that I assumed that I knew pretty much all there was to know: the jargon, the protocol, the flow charts. 

And then I found myself on the other side of the conference table.

Two weeks ago my husband and I sat in a special education meeting for my four-year-old daughter, Little E, the result of an evaluation she'd had with the school district's occupational therapist after her pre-school teachers had echoed my own concerns about her fine motor skills. 

I knew from my time on that side of the table that the people who sat across from me were professionals there to do their jobs, which, ultimately, was to help my child. Still, I couldn't ignore the fact that they were also there to tell me that she was decidedly flawed; worse, I was there to agree with them. 

Committing this betrayal while my daughter played happily at home filled me with a gnawing guilt.  This feeling was compounded not only by my mental list of the ways I'd already failed my child (pacifier, bottle, overzealous swaddling, liberal TV policy, extended period of denial), but also by my understanding that every day mothers cared for grown children with the needs of infants, slept on cots in their children's hospital rooms and birthed babies who would never take a breath. I was pretty sure that all of them handled their circumstances with more grace than I'd managed upon learning that my daughter was really not good at coloring.

Yet I doubt any of this internal mess was visible from the other side.  I knew my role in this meeting: small talk about the weather, conscientious note-taking, studious head-tilting and clarifying questions.

The occupational therapist who had evaluated Little E read from her report.  I knew from having been there that the people on the clean and clinical side of the table could separate the challenge from the child.  The fine motor delays that the evaluation had revealed were simply a problem to be solved and we were there to determine the best course of action.  But from my side, the view was a little hazier and the distinction not quite as simple.

Since the day of the evaluation when I'd sat at that very same conference table and watched my daughter, grim-faced with determination, fail to color properly, to cut with scissors properly, to form a letter, lace a card or trace a line properly, I had struggled with a measure of grief.  I wasn't exactly grieving for Little E, who was still the same sweet and silly, delightful and exasperating girl she had been before that day.  I grieved more for the fact that so early I had to retire the notion that she would travel the clear path I had imagined for both my daughters.  I grieved for knowing from experience that in school achievement is measured with pencil and paper, that preparation for standardized tests starts in kindergarten, and that none of this would come as easily to her as I wanted it to.

As the meeting neared its end, the chairwoman turned to the flow chart that is used to determine a child's eligibility for services.  From sitting so many times on the other side of the table, I knew that this was a matter of legality, of filling out paperwork and applying the appropriate jargon so as to get on with the real work of fixing problems and helping children.  She read aloud:  Is there a disability? Yes.  What type? Physical.  I felt my husband's hand on my knee.  My breath stuck in my throat, my stomach lurched, my head swam.

And I knew then that this was more than words and paper, jargon and protocol.  I knew then that despite my ten years on the other side of the table, there was a whole lot that I didn't know.

http://workplayeatdream.blogspot.com

  • 9
  • Sparkle (
    )
     

Comments

Post comment as twitter logo facebook logo
Sort: Newest | Oldest
VixensFix 5 pts

I don't know if this is anyway comparable but I grew up watching my parents pretend like there was nothing wrong with my brother when he clearly suffers from mental illness.

It served no one well to witness the denial or to suffer the consequences of their inaction.

You did what you're supposed to do. You helped your child so that she can overcome her encumbrance.

Read my blog!

http://www.willdatetoeat.blogspot.com

trigirl13 5 pts

I work in a clinic and do a lot of birth to 3 services. I have a lot of conversations with parents about how to prepare for the IEP meeting, knowing that it is different from how we do things, but stressing the importance that the parents ARE ALWAYS part of their child's team.

I also try to remember my own struggles with fine motor and how it may have made my school life easier if I had had OT. But, in the end, atrocious hand-writing, cutting and drawing did not keep me from being a productive member of society. I'm sure your daughter will find her strengths and capitalize on them. How could she not, with such devoted parents?

-julie

http://tri-ingtobeathletic.blogspot.com

snailteacher 5 pts

We just went through the same thing with our 22 mo son. His was a speech evaluation through infants and toddlers. It was so hard to sit when they were testing him and hearing them ask a thousand questions about his development. I felt that my child shouldn't be there because I am an early childhood educator. If I can not keep my own child on pace, how can I help other people's children! I know your feelings all too well!

Sarah@workplayeatdream 5 pts

It sounds like you've been a great advocate for your daughter. We were happy wit hthe evaluation that we got and the services that she will be receiving, but I definitely understand the importance of being a vigilant and vocal advocate. Alas, I think nodding and clarifying questions was all I could manage in that initial meeting. Now that we're there, though, I'm ready to roll up my sleeves. Thanks for the encouragement.

http://workplayeatdream.blogspot.com ( http://workplayeatdream.blogspot.com/ )

Sarah@workplayeatdream 5 pts

It is tough, so much tougher than I would have imagined for a problem that is really minor in the grand scheme of everything that could possibly go wrong. I hope all goes well with your son; I'm sure a borderline diagnosis is very frustrating.

http://workplayeatdream.blogspot.com ( http://workplayeatdream.blogspot.com/ )

Sarah@workplayeatdream 5 pts

Thanks for reading and commenting. The silver lining of the experience up to this point is that I feel that I've gained a whole new perspective on this part of my job.

http://workplayeatdream.blogspot.com ( http://workplayeatdream.blogspot.com/ )

JennWhite 5 pts

Welcome to the club. I remember sitting down on the floor and crying when the first thick envelope came from the Department of Mental Retardation. My first, long awaited, beautiful daughter, at 20 months old, needed 3 therapists. I've sat on the parent side of the table for over 13 years now, and the best advice I have for you is - no your job is NOT to make small talk, nod, ask clarifying questions. Your job is to do everything in your power, bring all your skills, knowledge and experience to bear, to see that she gets the best possible help.
My daughter, like the other commenter, turned out to be borderline on her speech. But what they said was borderline was truly not borderline. Very few people could understand her well, and nobody who'd just met her could understand a word. I had to be insistent that what they were offering was not good enough. I had to give specific examples. I even hauled in video tape and asked them could they understand her, speaking full face into the camera. I made the point that just because she's not as 'handicapped' as some of the students they deal with, she's no less deserving of being the best abled she can be, and that they had a professional and moral obligation to see that she had that opportunity. She got the therapy.
Today she's bright, articulate, and on a fast track to success in life. You can see here here: http://www.youtube.com/watch?v=8SHsbbLFI50
So don't just nod, make sure you understand your daughter's defecits, and insist that all possible remediations are undertaken. If you don't, who will?

Jenn White

ScrappersWorkshop.com

FamilyFrugal 5 pts

My son has some speech issues and we were at that exact table back in September. It was so difficult. What made things worse is that he did NOT qualify. He was borderline...just on the edge. We'll bring him back next year and get him tested again, but I can't help but wonder if he is falling through the cracks.

It could definitely be worse. I know that. That doesn't make it ache any less. We want the world to be effortless for our children, but that's simply not possible.

*hugs* mama

Blog: Family Friendly Frugality ( http://www.familyfriendlyfrugality.com/ )

( http://www.familyfriendlyfrugality.com/ )
Section editor & featured author: Momtastic What To ( http://www.momtastic.com/shopping )

crazedmom 5 pts

I was touched by your story and sometimes, I think all teachers should sit on that side of the table.

Vicky

Proud Mom of 3 with a background in Heavy Metal Hair Bands