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I write Stirrup Queens when I'm not reading other people's blogs, cooking, or chasing after my twins. I'm the author of two books: Life from Scratch,...
 
 
 
 

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What to Say to Those Experiencing Infertility

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Two weeks ago, the ever-brilliant Carolyn Hax covered what to say to someone who may be trying to conceive unsuccessfully. The part I found most interesting was that the person was asking about a friend who had been trying for five months, which barring a concrete diagnosis that clearly would impede fertility (a lack of fallopian tubes, azoospermia, no uterus), is not infertile. They're not really even having fertility issues. They're having fertility annoyance after being told by their middle school health teacher that if they do so much as look at a member of the opposite sex, they will become a teen pregnancy statistic.

It really is a bitch when you find out you didn't actually need to spend that money on birth control after all.

Infertility is diagnosed after one year of trying to conceive with well-timed intercourse with no pregnancy or after three consecutive pregnancy losses. There are plenty of people on the outskirts, those who should have fertility fears even prior to attempting family building because they have medical issues that have been known to impede fertility such as PCOS or endometriosis. But even a diagnosis of those conditions do not point towards infertility. There are more women with PCOS and endometriosis who conceive without assistance than those who don't.

Some of those who are pre-diagnosis will be diagnosed with infertility in the future, which is where the advice column begins: what to say to the possibly future infertile? It would be foolish to tell them to relax and not worry, especially if in the future, they discover that they had good reason to worry. It also wouldn't do them a favour to take them to the brink of IVF if there isn't proof that it may be necessary in the future.

And the questioner makes a great point--she was always happy when people told her not to worry, yet finds that the thing that made her happy (assuring her that it will happen in the future), annoys this friend to no end. She doesn't want to hear that things may be right somewhere down the road nor does she want people to assume that she's not trying to become a parent.

Carolyn comes back with the best advice that could possibly be given in this situation and its applicable in speaking to anyone on the infertility spectrum--from the pre-diagnosed to the IVF veteran. She tells the questioner that when speaking to her pre-infertile friend, she should admit "that it's hard for everyone to know what to say."

Simple, really, but it goes far. For those who crave a solution, it provides company while they seek it. For those who wish to not have their feelings dismissed, it states an obvious truth. Even those who think they could put into words how they need others to support may find that their needs change from day to day, hour to hour.

Hello, My Name is M... and I'm an Infertile had a brilliant post this week explaining why she can't simply state what she needs:

I really appreciate when other people ask, but unfortunately it also means that I have to answer. And really, there is no good answer. At first, I tried asking for what I needed that day. Sometimes it was to listen, other times to leave me alone, still others to ignore it and pretend life was normal. This was all great while I was in that moment, but the problem arose when I left that moment and they were still doing what I had asked of them. Then I was left feeling hurt and upset that they didn't understand... What I need shifts daily, or even hourly.

Isn't TTC Supposed To Be Fun? wrote in regards to the wrong things people say: "I'm coming up to TTC for a year and a half, and the comments are just ROLLING in. I stopped talking about TTC at work because 1. It really is no one's business, and 2. I was tired of hearing 'You're trying to hard, just relax' from people that have never ever been in my situation before in their lives."

Reproductively Challenged told a story about a student at the acupuncturists who tried to make her feel better about using acupuncture in conjunction with IVF by telling her that people can conceive well into their fifties. When Ms Heathen pointed out that those women usually use donor eggs, the student reassured her that

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Melissa Ford 5 pts

I love your last part about the particular words being unimportant and it truly being about the impulse, the reaching out.  Because truly, there are no perfect words.

Venting about infertility since 2006
www.stirrup-queens.blogspot.com ( http://www.stirrup-queens.blogspot.com )
and we're not talkin' cowgirls...

barbienance 5 pts

I have found other peoples clumsiness unbearable. I still do. Particularly in that it comes from all directions.

I have become a bit harsh on people, I find that so much of the time, their response is about THEM (which is obvious when you think about it - it's their response). I often feel like people want me to make them feel comfortable about the death of my child, and every subsequent failed IVF cycle. I've heard their dreams that it was THEIR baby that died, the stories of their friend's friend who had this happen, the guilt they feel ......  I've had friends run to me as a place to hear their own pain echo about, and friends run from me (literally) in confusion (?) at the fact of their pregnancy and my loss.

But the thing that I have found hardest of all to bear is the lonliness. I have been very angry about this because I love my friends. But I have had come to some kind of acceptance that this is a path that only I can walk and I have to do it alone. I kind of hate that, but realise that it is true. Facing the death of your child and fearing facing the death of hope of any other children, is facing your own death in way. It can only be done alone.

A part of me feels like I have walked so far into the wilderness that I have walked over the curve of the earth. The place I am in is not even visible to those that know me. It is a place that they cannot see or imagine. In that place, what others say to me becomes fairly irrelavant. 

But at times I am aware that there are people who can still see me in the distance, and they are sending some love and hope out to that lonely place. That is precious. The actual words aren't that important, it's the authenticity of their love.

B

mysailorsmistress 5 pts

I think the latter is true. 

They are a VERY religous couple and believe in the power of prayer. At least from what I believe. There is a language barrier there so I am not sure. 

I feel VERY bad. Especially since I will be having my little one and thinking the entire time our kids could be SO close in age. It really makes me hurt for them. 

I really can't explain it. I saw her recently and I tried not to talk about it or anything. It was hard answering her questions.  She had MANY.

I would give her my "girl" parts to make her happy. How do you tell someone that!!!

Jennifer

www.mysailorsmistress.net ( http://www.mysailorsmistress.net )

Melissa Ford 5 pts

Oh, and that is the best barometer for knowing when to say something and when not to.  If you're not being told directly; if you're hearing the news 2nd-hand, that's usually an indicator to me that the person either (1) doesn't care for my support or want my support and therefore isn't telling me or (2) wishes to have it private and not deal with questions or support.  So if they're telling me, I always assume that they want a response.  That they want support now or be able to get that support later.  Someone writing on a blog, for instance, I assume they want to hear something back.  Someone not telling me anything (even if I suspect something is up), I leave alone and not pry.

Venting about infertility since 2006
www.stirrup-queens.blogspot.com ( http://www.stirrup-queens.blogspot.com )
and we're not talkin' cowgirls...

Melissa Ford 5 pts

Absolutely--and it's a difficult position to be in to want to comfort or help.  It is hard to see someone you love in pain.

I do think admitting that you're thinking of them, that you're there to listen, that you'll do anything to help, but that you're simply at a loss on all fronts is helpful to hear.  They may not know what they need. 

Venting about infertility since 2006
www.stirrup-queens.blogspot.com ( http://www.stirrup-queens.blogspot.com )
and we're not talkin' cowgirls...

loribeth 5 pts

"Fertility annoyance." Bwahaha!! I love you, Mel. : ) I used to post in a forum for pregnancy after a loss --  everyone there either was pregnant after a loss, or hoping to be soon. I was in the middle of infertility treatments, having lost a daughter to stillbirth after 2.5 years ttc on our own and then ttc for another year after her death before calling in the troops. I couldn't believe it when one of the younger girls on the forum posted about her "struggles with infertility." (She had three living children and had to try a whole five months for #3.) Needless to say, no sympathy from me.

My personal feeling is that my fertility, or lack thereof, is my business (& my husband's) & nobody else's. Questions & comments not welcomed. However, the writer's friend was obviously inviting comment by her remarks. If she SAYS she doesn't like hearing other people's optimistic comments, & that others don't know what she's going through, then it's obvious she doesn't want to hear "it will happen," etc. from this friend either. I agree with your approach -- a simple, "I'm sorry, I don't know what to say, I know this must be hard" and a listening ear is really all that's required.  

mysailorsmistress 5 pts

This is a hard topic for me. 

I was diagnosed with PCOS in September 2008 was told I would have to take Clomid to get pregnant and so on. Well Jan 1st I found out I was pregnant and Jan 9th a doctor confirmed I was 8 weeks pregnant. This is my 3rd baby. After hearing that I would have to take meddication I mentally decided that my daughter and son were enough. That they made our family and our life was complete. Then the shocker. 

The hard part.... My SIL who is in her 40's has been trying for something like 13 years to get pregnant and have a baby. We were told in November that she was pregnant. Then in February she told me she lost the baby. I am not sure how to handle this. I really do not know what to say or what to do.  I know that they would make great parents and they have all the means to do so. 

I feel very lucky and blessed. I also feel VERY torn because I would love more than anything to help any women out there have a child that can not. I would be pregnant my entire life to help another women become a mother. 

I have told my husband I would help her. I told my husband if it were ALL their stuff I would be more than happy to be miserable for 9 months so that they could have joy in their lives. My dh has said they would never do that. 

You get torn as someone on the outsider of a family member as well. 

Jennifer

www.mysailorsmistress.net ( http://www.mysailorsmistress.net )