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I’m a 40 year old Mama Bear married to my sweetheart for 19 years. We have 3 beautiful boys ages 11, 9 and 7. My oldest started showing signs of a mo...
 
 
 
 

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Who Do You Tell -- and When -- When Your Child Has a Mental Illness?

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I once read “If your child has cancer, people bring you casseroles, but if your child has a mental illness, they stay away.” I’m sad to say that we’ve faced this in our own community. Our son lost his best friend after a rage with me. Once I explained the situation to the parents, they ended their friendship. This is still painful for my son today, almost 3 years later. He still talks about this child, draws pictures of her and still tries to find her new phone number. If I could restore this relationship, I would in an instant. My heart aches for the loss he feels.

On the other side, we’ve been blessed to feel the love and support of family and friends that have stepped in to help our family when we needed it most. But before we could accept this blessing, we had to open up and share our story with others. This means exposing the details that are so hard to share, so that they can understand what’s hard to imagine. If you’re struggling with this step, I encourage you to seek out those you trust and open up.

031/365: 60 second walkTo be honest, I’m reluctant to open up to others because I’m afraid of being judged. I don’t want people to think I’m a bad parent, or that we ruined our son because we let him play video games and eat sugar. I’m also afraid that people will judge my son, thinking he’s a bad kid. I don’t want my son  “labeled” and treated poorly because of it. I’m concerned that my dear friends will stop spending time with us because they’re afraid of my son.

Then there are the times that I’ve wanted to tell others about my son’s illness to create understanding and compassion for my son. Because of my son’s poor impulse control, he hasn’t always been the best playdate. I have, on more than one occasion, heard very judgmental comments about me being a bad parent because of my son’s behavior. It’s times like these when I wish I could just tell others our story so they can understand and forgive.

Lately, I’ve felt very broken, our recent challenges with our son have been so overwhelming and I’ve felt so isolated in trying to cope with it all. It was my Mother-In-Law that reminded me that “You can’t go through this alone”. She was right. I’ve started to open up about our pain, heck, I even started a blog to get things off my chest. I’ve leaned on my family and opened up to my friends. And you know what? I feel so much better today. I may feel weak, but I feel like I’m being put back together, one piece at a time by the strength of God and those around me. I am truly blessed.

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I’m a mother of 3 young boys, the oldest suffering from Bipolar 1 Disorder. I write a blog to let go of my pain and to help support others by letting them know they’re not alone.

http://mysonhas2brains.blogspot.com/

Photo Credit: dotbenjamin.

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BarbRey 10 pts

This is an amazing, hearfelt blog. God Bless you and your family, you know we're all on this planet together, we are all God's children. Best of luck to you and your child. families should pull together and support where needed. With faith in God, you'll all pull through this.

My Son Has 2 Brains 5 pts

BarbRey thank you so much for your support!

mommyneedstherapy 6 pts

We walk a very similar path my son. It is isolating and frightening. We have very little contact with family on my side and zero support from them. My parents have not seen their grandsons in 2 1/2 years.

I have a few supportive friends, but never offers for play dates with my son.

I too think it would be so very different if he had cancer. Metal illness scares people.

My Son Has 2 Brains 5 pts

mommyneedstherapy you're right! I think the fear people have creates an automatic stigma around mental illness. I wish there was a way to change the public's perception so compassion could flourish.

katesslate 5 pts

My bi-polar son is now 2 0.,., and without the loving and compassionate support of one friend, I don't know how we would have ma de it. II really had no family support because he was extremely difficult, and no one had any patience or compassion for him. That usually put me at odds with everyone, and I simply stopped looking for help from them. I could cry, rage, vent, and yes. even laugh now and then about him with my dear friend Bonnie. I am glad you are blogging about this. I know how your life is. I always said I was going to write a book and title it Nightmare in November,hands down his worst month...or, was that Christmas, or his birthday, or any other out of the ordinary event...Just know, you will both live thru this, and I think you will find tons of support on here. Wish I had it when he was diagnosed at 8 years old!

My Son Has 2 Brains 5 pts

katesslate I don't know how one does it without support. Bless your heart for doing it on your own. I hope things are better as your son got older.

omwoman 5 pts

Thank you for sharing, it is nice to know when you are not alone in your struggle. You are an awesome mom, hang in there sista!

My Son Has 2 Brains 5 pts

Thank you DesiValentine for sharing your mum's story. I love what you said about her being the "Dragon slayer", I have been there myself, kissing my child and tucking him to sleep while my skin still bleeds from the scratches he gave me from a rage. When you're in the moment, fighting those dragons, it really feels like fighting something other than your child. You truly are fighting the illness. Then, once your child returns to normal, you feel the love rush in, wanting to cuddle them and restore their spirit after all they’ve been through.

After such an experience, a mother needs help restoring her spirit too.

DesiValentine4 57 pts

My mum is a foster parent to children with extreme behavioural issues, almost always as a result of an undiagnosed or incorrectly diagnosed mental illness or organic delay. She has been beaten and verbally assaulted by the children in her care. She has rocked them to sleep in her arms, singing softly like any parent would, only minutes after she had been the object of their rage. I call her The Dragon Slayer because she works so hard to slay these kids' dragons so that they can have a fighting chance.

I don't think anyone could do this alone. I applaud your courage to share your story and reach out to find a community. You are so brave!

My Son Has 2 Brains 5 pts

DesiValentine4

Thank you DesiValentine for sharing your mum's story. I love what you said about her being the "Dragon slayer", I have been there myself, kissing my child and tucking him to sleep while my skin still bleeds from the scratches he gave me from a rage. When you're in the moment, fighting those dragons, it really feels like fighting something other than your child. You truly are fighting the illness. Then, once your child returns to normal, you feel the love rush in, wanting to cuddle them and restore their spirit after all they’ve been through.

After such an experience, a mother needs help restoring her spirit too.

My Son Has 2 Brains 5 pts

Thank you forever for your encouraging words!

Forever 17 24 pts

I'm so sorry that you are going thru this alone, I have a special needs daughter, with plenty of health issues that give me looks and stares and unwanted judgements, the best piece of advice I can give you is that you have to learn to not care ," I know easier said than done" but at the end of the day all that really matters is your family and friends, the judgement of strangers will begin to feel less as an attack and people either get it or they don't. I think your a great mom doing the best that you can and that's all that can be expected. People always tell me that I was chosen, because not everyone can handle what i take on with my daughter, and you know what? i feel blessed to take on the challenge. You are stronger than you think and you will make it thru. Good luck :)

Conversation from Facebook

Kelly L. Gullickson Madison
Kelly L. Gullickson Madison

A place to start is at your state legislature since the mental health care system is tragically broken in most states. But it is a dicey line on where it is a 'need to know' issue since the stigma of mental health issues can warrant so many obstacles to employment, education and in personal relationships. We are at the beginning of this road and trying to be open and yet cautious to protect what may lie ahead in the future.

Michelle Leong Francis
Michelle Leong Francis

in my region Ontairio Shores is an option for help. Proud of you for recognizing then advocating. We all have some degree or another and varing levels of severity of a number of aliments. The point is awaressness, acceptance and advocacy.

Carolyn Schofield
Carolyn Schofield

I have a son with BP disorder. He was diagnosed very young and it was difficult to share, but as we did I became an advocate for mental health issues helping parents to cope. When my son entered middle school, all the kids who knew and accepted him, turned on him and started calling him names, we had to move out of the state so he could "re-invent" himself. it was very sad to watch and the parents who were my friends didn't want to help or acknowledge what their kids were doing. We are doing great, my son chooses who he wants to tell and we go on