My Autistic Son's Life: Not Less Valuable
By Shannon Des Roc... on March 20, 2012
BlogHer Original Post
Obviously, I'm feeling angry and confrontational. Explosively so. With good reason: George Hodgins, a young autistic man from my son's school, was murdered by his mother Elizabeth (who then committed suicide) earlier this month. Mainstream media reports have focused almost exclusively on how difficult life was for his mother, framing parents killing disabled children as an understandable tragedy, while parents killing typical children is considered a preventable tragedy. And I am telling you right now, it doesn't matter how difficult parenting is, a parent killing their child is never justifiable. Never. Ever. Not for any reason.
Because this is a parenting column, I need to be clear: I do not lack empathy for Elizabeth Hogdins. How could I? I am her: by all accounts, George was the 22-year-old version of my son Leo. My first reaction to George's murder was gut-busting sobs -- an instinctive reaction to knowing it is only through the caprice of fate that George was Elizabeth's son, and Leo is mine. I'm crying again as I type this, because George was one of our kids.
But I also know three really important things:
1) George is the victim. He is blameless. His mother's stress and nervous breakdown and suicide were not his fault, and her actions cannot be condoned. No child should ever experience a parent pulling a gun on them.
2) George had the same right to live out a full happy life as any mother's child. His autism did not make him imperfect, unworthy, or less of a person than a neurotypical child.
3) Elizabeth and I signed up for this parenting gig, we chose to be mothers -- and that choice came with no warranty, and no guarantees.
That third point is something we don't talk about enough as a culture, don't stress enough when hopeful parents-to-be salivate over rainbow-colored onesies while visions of perfect catalog-ready children dance in their heads: Parenting isn't a rose garden, it's a lottery. You get the children you get. And then, because again it is your choice to parent, you are responsible for not just accepting, not just loving, but championing those children. Wholly.
My parenting reality is different from my daydream version, that's for certain. I anticipated the laughs and love and snuggles, sleepless nights and too much driving to appointments and activities. But I never really entertained the possibility that my lovely, loving Leo, like George, would also have intense autism.
Yet I should have been ready for an autistic child as a possibility. Why wasn't I? Why did I freak out when my son was diagnosed with autism, believe people who told me he was "broken," embark on a crusade to "cure" a child who needs significant support but who is not ill? Because we live in a culture that conditions us to devalue, fear, and dismiss children like George and Leo, that sees them not as people with rights but as problems -- ideally, someone else's.
That attitude needs to change. Our society needs to more honest about parenting realities, needs to better prepare parents-to-be how to accept, support, and respect children with autism and other disabilities. The families and children who find themselves on the special needs path do not deserve to be treated as pity pariahs, as cautionary examples of bad luck, as saints to be patronized.
Instead, we should better educate parents-to-be -- and then be ready to support those who need it. Our conditioning, our reaction to parents of children with new special needs diagnoses should be, "We are your community, and we're here for you. Parts of this may be really hard, but please know that we accept you and your children, and you will never be alone. Here are the parents who know what it's like to be you. Here are the adults who used to be your children, and who are willing to talk to you and help you understand your children better. Here is your local support group. Here are your internet communities. Here are the resources you'll need to help you choose and secure best options at each stage. Together, we'll support you -- so you can focus on loving your child, on being their parent, on helping them reach their potential."
What are some actions we can take to further a more honest, accepting, and supportive society?
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