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JustLinda
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Profession: Astronaut.  (Additional Information: Not really an astronaut.)Things I Care About: Cheddar Bay Biscuits and World Peace; of course...
 
 
 
 

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Wife of Diabetic

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I hear him slip out of bed and I look at the clock.  1:41AM.  The same mysterious capability that would wake me when my babies were rustling in the other room even before they cried out works here too.  I’m attuned to these particular night sounds.  When he’s up like this, I am on guard.

It’s  the usual routine; first a trip into the bathroom where he tests his blood sugar level, then a trip downstairs.

Usually, he moves like a cat.  He can see in the dark and manages to navigate soundlessly through the bedroom and the house at large.

Me?  Just a trip to the bathroom in the dark becomes a scene from a Jerry Lewis movie.  If there is a Lego to be found in this house, I will step on it with my bare foot.  If there is a squeaky floorboard, I manage to never miss it.  I trip over any obstacle, no matter how inconsequential, left on the floor.

If he dies in this bedroom, there is a 50% chance it was his diabetes, but there is an equal chance I bludgeoned him with his own shoe after tripping over it.  “How. Many. Times. Have. I. Asked. You. ..”

But we’ll save the bludgeoning for another day.

Now it is a quarter to two in the morning and I lie in bed listening to him head downstairs for some juice or whatever he gets to bring his blood glucose back to normal.  I wonder “Should I put my pajama pants on, just in case?”

See, my father-in-law lives here so when I have to run through the house at night to perform emergency life-saving procedures, I like to be dressed.  It was the diabetes that was to blame the time my father-in-law saw my boob.  No repeatsies, ya know?

I hear him down there fixing something to eat or drink, and he’s not as quiet as a cat this time – he’s banging things around, much louder than usual.  To me, this is one of those subtle clues.  That must mean lower-than-usual blood-sugar.  Wonder how low he was?  Should I get up?  Or do I wait for the CRASH-THUMP of his body hitting before I go running?  That’s how it usually goes.  Where did I put that emergency glucagon shot after our last trip?  Is it back where it belongs in the medicine cabinet?  Should I put my pants on?

Maybe we shouldn’t have put granite counters in the kitchen.

I mean, the kids are all old enough that I don’t worry so much about them hitting their precious noggins on it – but my husband is a diabetic.

Laminate would have been less deadly.

I hope there’s not a thump.

I’m putting my pants on anyway, just in case.

Fortunately, I hear him coming back up the stairs and he climbs back into bed.

“You OK?” I ask.

“Yeah.  Just low.” he says.

Low is a word that carries a ton of meaning when you’re the wife of a diabetic.  I find myself asking him all the time whether he is low.  If he is sweating when I’m not even the least bit warm, I ask “Are you low?”  When he’s acting goofy about something, “Are you low?”  Sometimes diabetics are just goofy – it doesn’t always mean they’re low.  But I ask.

For awhile there, we were having lots of issues with these lows sneaking up on him, and I would ask a lot.  To him, the question started sounding like an accusation.  To me, I asked it as a sort of verbal warning bell.

Ding. Ding.  Diabetes, Round 8.

We are fortunate in that we rarely have marital spats that get the adrenaline pumping, but when we have, I’ve had to worry about his blood sugar.  Adrenaline will do funny things, and if he drops fast when emotions are already high, he gets aggressive, kind of like a mean drunk.    Fortunately, in 18 years there have only been a couple times where this type of situation has caused him to push things too far.  In the heat of the moment, I just think he’s an asshole but later I blame the disease.

We’ve had some doozies of run-ins with this opponent.

But tonight, he’s

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Jennifer Conner 5 pts

WOW - it is so refreshing to read an article about being married to a diabetic. My husband is a type 1 diabetic, diagnosed at 17 - he'll be 40 in a few weeks. Sometimes I get so frustrated with him. He forgets his insulin at home sometimes. I can't understand how a diabetic forgets his lifeline. And it happens wayyy too many times. For the most part he takes care of himself, although he eats fast food everyday & has a terrible diet. He still thinks he has the metabolism of a 25 year old. My prayer is that our 2 kids (5 & 2) don't get this disease. It runs in his family & I want them to live a regular life - as close to regular as possible.

Thanks for shedding light on life with a diabetic.

justlinda 9 pts

Claydiva, I kind of wish the internet, and particularly the blogosphere, was built up more when I first started to deal with this, because I had no idea what was normal and what wasn't. There is an amazing sector of diabetes blogs - parents of diabetics, wives of diabetics, and of course diabetics themselves. Feeling more connected always helps, because you feel less alone. And I truly believe we all have more in common than we know.

Dawnbrown - when I first read about Dead in Bed syndrome, I was floored. A diabetic dying at night without any warning - and the doctors don't really seem to know why. Was it a low that didn't wake the person up? Was it a convulsion that resulted in heart trauma or something else? I don't google it anymore because it's too scary. But if my nightmare had a name, it would be Dead in Bed Syndrome.

Thanks for your comments...

( http://justlinda.net )JustLinda

fabulously imperfect

Twitter @JustLindaSTL

dawnbrown428 5 pts

I grew up with my Dad having diabetes. He survived many bouts with being low, passing out, black outs, going of the road and someone thinking it was due to drinking,etc. At only age 57 he went to sleep and didn't wake up which has been quite hard on the survivors. Out of 6 six children one brother developed diabetes a short time ago @ 49 yrs. young. Our mom got diabetes many years later in life also. Now my husband has it. I would like to see them get rid of it. I know some have dieted, lost weight, exercised and gotten better from it. Some will exercise,some not so much thus far..or maybe for awhile. Praying for a cure asap. Thank-you for blogging.

claydiva 5 pts

A friend just sent me the link to here, since your post made her think of me.
My husband got type 1 diabetes at 32, that was a surprise! We now have two celiac boys, so diets around here are quite the party.
Your description of being on when your husband stirs, or gets up is so right on. I think that's the first time I've felt some one "gets" me, and gets what it's like to be the wife of a diabetic. My dh also gets defensive when I ask him if he's low too often, and the kids ask him when he's just being silly.
Anyway, wow, thanks for your very, very spot on description, it helps to feel connected to others with similar issues.

justlinda 9 pts

Shall we chat?

Does diabetes touch your life? Directly or indirectly?

I knew nothing about the disease, really, before I met Bill in 1992. It's been a journey - I know a lot more now. I'm no expert, but here's what I know:

It's still a dangerous disease. It may not have pink Kitchen-Aids helping to raise money for its cause, but it affects millions and it's not some innocuous thing "Oh, that's just that disease where they have to take shots."

People die, children die. We're lucky in that my husband's diabetes is pretty well-managed and his A1C results have always been good. But not everyone is.

There is a cure out there - they've cured it in mice! They do pancreatic transplants now!

What I'm saying is - don't forget about this one. It's worthy of some of your charity money. It has a chance of really breaking through in the next few years...

And it is scary. And it does impact lives. A lot of them every day.

What's your story? Have you been touched by diabetes?

( http://justlinda.net )JustLinda

fabulously imperfect

Twitter @JustLindaSTL