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Winterproofing Kids Who Don't Get Cold

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My son's internal thermostat is busted, which is not surprising; atypical sensory perceptions are common in but not limited to people with autism. Since Leo doesn't care about being cold and he's also sensitive to clothing textures, we've got ourselves a boy who prefers to be all naked, all the time -- and who, if we're not vigilant, frequently is. Even in near-freezing temperatures, even in a heated-but-still-not-warm pool, as we discovered while visiting his grandparents for Christmas:


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 Yes, it's Las Vegas -- but the temperature topped out at 51 degrees F.

As I sat by his grandparents' pool, shivering in my multiple layers and watching my naked boy frolic in the near-frozen wet, I wondered -- what do parents of children with miscalibrated sensory systems do during real winters or other air temperature-based challenges?

So I asked them.

Susan Wagner of Friday Playdate has a son who doesn't seem to feel cold, either:

My son, who is nine, has never once told me that he's cold; when the weather turns, he's liable to wander outside in his shorts and never notice the difference. Fortunately, we live where this isn't necessarily an issue (winter in Oklahoma can be very mild) but when it does get cold, we have to make a deal of pointing out exactly what layers of clothes he needs. And even then, the chances are good that he'll come out of school at the end of the day without his coat, no matter what the temperature.

This fall, when the weather turned, I told the boys at breakfast one morning that it was going to be "cold," and then sent them to get dressed. I meant cold like 50 degrees F, but Henry came down wearing a t-shirt, his uniform polo shirt, his school sweatshirt, and a fleece pullover. And then he put on his down coat, his hat, and his gloves. Because that's what we wear when it's "cold!" And then last week, when it was genuinely cold (15 degrees F), he went out to dinner with nothing under his coat but a short sleeved t-shirt.

He's not able to anticipate what "cold" will mean based solely on the temperature; even when he steps outside and feels the weather for himself, he can never figure out what will be appropriate to wear. I spend a lot of time listing for him what layers he needs for what weather. Fortunately, he's a rules kid and he'll wear what we tell him, but we have to remember to *tell* him.

Jennifer Byde Myers of Jennyalice (her son Jack has autism and cerebral palsy) is in the same boat, but her son's speech is limited so she has to be extra cautious:

Jack does not seem to notice hot or cold, generally speaking. He would happily play in our backyard well past the time a "typical" child would seek warmth. Because we have to be aware for him we try our best to clothe him in the most appropriate outfit for the cold. I try to wear a similar number of layers and fleece/wool combination so I can help gauge when he might be too hot or too cold.

Tarrant of Retro-Food.com has a son who senses the world intensely, though he is able to prioritize:

Boy doesn't care about cold weather as much as he does about not having to put on or deal with unfamiliar/uncomfortable clothing that violates his special clothing "rules" (e.g. no scratchy, stiff, binding, stretchy (like knit hats) clothing.

Kristen Spina of From Here to There and Back has a son who adores the cold:

I'm not sure if it is because he was born into cold weather, or because our lifestyle was such that I would simply bundle him up, plop him in the stroller and off we'd go for the day, but my son has never really been particularly sensitive to the cold. In fact, he seems to enjoy it. Snow, in particular. If there is snow outside, I can't keep him in the house.

We're also very lucky: He dresses appropriately for the weather. Again, maybe because it's been a part of his routine from infancy, he really has no aversion to cold weather gear. As long as what we ask him to wear is soft and fleecy next to his skin, he'll bundle up as much as the weather (or we) demand. I know some kids struggle with outerwear and gloves and hats, but

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mamabegood 5 pts

My son Jack has no thermometer.  He doesn't know if he's hot or cold.  But he gets very cold very easily - no regulation either.  He will never tell me he's cold, even when he's blue and shivering.  If I ask him if he's hot or cold, it's always "no."  Since he has absolutely zero body fat (what a waste!), he gets cold a lot.  So I always bundle him extra warm, hats, mittens, the works.  Which gets me a lot of grief from his dad.  But then Dad doesn't have zero body fat.  *snicker* 

The good news is though he dearly loves to be naked, he also dearly loves his footie pajamas.  He even plays with the zipper in his sleep.  Which is annoying as it wakes him up.  Which he does anyway a million times a night.

Loved reading everyone's experiences with this!  Thanks so much!  And I MUST hook up with jennyalice as my son also has cp and autism.

Shannon Des Roches Rosa 5 pts

We eventually resorted to getting our son oversized footie jammies and putting them on backwards (zipper up the back) as at the time he did not have the ability to then take them off. Otherwise it was hours of fighting the stripping and the naked. We had a few blessed years, but now he can get the reversed jammies off and we're having bedtime partytime again. So, anything that helps our kids get to bed quickly and safely is OK WITH ME!

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

But, as always, so very glad that your brother has you for a sister. I wonder and worry about the kids and adults who don't have advocates who *know* them, who don't know what to look out for.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

But, as always, so very glad that your brother has you for a sister. I wonder and worry about the kids and adults who don't have advocates who *know* them, who don't know what to look out for.

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

Shannon Des Roches Rosa 5 pts

Hi Cathy,

Do you mean you suspect there might be more going on with your son than just the wonky thermostat? You should read Jaelithe's comment below about Sensory Processing Disorder. There are a lot of resources for helping kids with sensory issues, the most popular of which Carol Stock Kranowitz's The Out of Sync Child series ( http://www.out-of-sync-child.com/ ).

Good luck!

Shannon Des Roches Rosa
Squidalicious.com ( http://www.squidalicious.com ) parenting first, autism second
CanISitWithYou.org ( http://www.canisitwithyou.org ) real tales of schoolyard terror and triumph

jaelithe 5 pts

Sensory Processing Disorder, in adults. It's not autism but it shares some of the sensory symptoms. My son has full blown SPD, and I have what one might call sensory quirks that were more intense when I was younger but have persisted to a degree into adulthood.

Even if another underlying medical condition is causing your sensory sensitivity, some of the treatments that help people with SPD may help you feel a little more comfortable in your clothes, so I think it could be worth your while to check it out.

As for the original post, my kid with sensory issues is OVERsensitive to temperature changes, which can be interesting when we're in, say, a public bathroom with its automatic sinks stuck on Extra Warm and he starts screaming like the water is scalding him when he tries to wash his hands. (It doesn't help that he's a redhead, too-- apparently redheads feel thermal pain more intensely than the rest of us.)

He also gets cold fairly easily, but he dislikes blankets and often kicks them off in his sleep. In fact, it took me two years of occupational therapy just to get him to tolerate being tucked in at night in the first place (and swaddling as a newborn? Hah. Fuggeddabout it.)

I'm glad you posted this to help those with broken thermostats!

LMAshton 5 pts

Howdy! My name is Laurie and I have a broken thermostat...

I grew up in the sorta northern parts of Canada where -40C was common every winter, and temperatures regularly sat at -30 to -40C (-22 to -40F) for weeks at a time. I regularly wore shorts when it reached a balmy -13C (8F). I never got frostbite or sick because of the cold.

Summertime, on the other hand... I frequently got heatstroke starting at 25C (77F), and now that I live in a tropical country, have to be extremely careful to make sure I take in enough liquids and salt. It seems like I'm stuck at maybe 10 or 20 degrees warmer than everyone else, even though my temperature is normal, no fever.

I also have the textures issue with fabrics. Nothing scratching, binding, choking, tight, or form fitting. No long sleeves. No nylons. Cotton, rayon, linen, silk are fine, but acrylic, nylon, polyester are not. Comfort is the key word. I care far more about comfort than I ever will about style. I'm so sensitive that there are days that my husband can't touch me since it sends me on overload. But I'm also sound, sight, taste, smell sensitive, too. And if I could go naked without freaking other people (and me) out, I would.

I'm not autistic, although I could possibly be high-functioning aspergers. More realistically, though, mine comes from my genetic collagen defect, Ehlers Danlos syndrome.

I have no suggestions for how to deal with it in kids. No clues. But there's hope that they can live through it. :)

And, apparently, Blogher's spam filters think this post might be spam. Don't I feel special.

Laurie in Sri Lanka

Chilli & Chocolate ( http://food.laurieashton.com ) | A Canadian in King Parakramabahu's Court ( http://srilanka.laurieashton.com ) | LMAshton on Twitter ( http://twitter.com/lmashton )

lizditz 5 pts

Liz Ditz I Speak of Dreams ( http://lizditz.typepad.com ) lizditz@gmail.com

It's always risky to look for diseases in descriptions from the past, but this is possibly worth-while:

Uta Frith's Autism: Explaining the Enigma (2nd edition, 2003) has a section on the "Holy Fools" of Old Russia. (Other translations may be "Fool for Christ" or "Blessed Fool".)  Horace W. Dooley (who may have had a child or family member with autism) made in several places convincing arguments that some of these individuals, recorded as far back as the 15th century, may have had autism.

One feature of the "Holy Fools" was a marked indifference to temperature (given that it is Russia) an indifference to cold.

Right now, given that it is winter here in North America, we're talking about cold.  A bigger issue for me with my MOL neurotypical kids back in the day was managing sun exposure, specifically sunburn.  They all hated sunscreen of any kind and it was a major battle to keep them protected from sunburn. 

LisaLaGrou 5 pts

I have a son on the spectrum with sensory issues and I've never heard of this before! Thanks for educating.

bramble 5 pts

Both my ASD sons are impervious to the cold. I must admit that they actually do feel warm to the touch and I often wonder if they are running fever, though they are not when I check.  At night, when our poorly heated wings of the house reach outdoor temps, we'll often find them both stripped down to their underpants/diaper with blankets on the floor. They may even be cold to the touch then, but there's not a blame thing we can do to keep them covered from the start. Recovering them introduces a change in texture and often wakes them and then we're awake for **hours** which is, quite frankly, not worth it a lot of the time. Lately, though, they've become interested in their "flight jackets" when they go outside to play because the acquisition of patches, etc. is right down their alley. We get little patches from NASA and other militaria sales shops and sew them on and the boys LOVE THEM...any chance to wear them is a party Perhaps I should send them with them to bed some nights...hmmmmmm....

Bramble

Shark-Fu 5 pts

Great post Shannon!

My older autistic brother is 39 and he has had issues with hot and cold temps his entire life.  Although many people wrongly and rudely dismiss this issue, it can be a matter of life and death.  Jumping into cold water, staying outside in extreme heat or exposing skin during dangerously cold conditions (like we had here in Missouri last week) is no laughing matter.

As my brother's co-guardian, I work closely with staff at his residential center to make sure they have soft fabrics with lots of texture for him in the winter or light weight textured fabrics for summer.  We worked having my brother put on proper outer gear in winter and wear seasonally appropriate clothing year 'round into his Person Centered Plan - now we can gauge his progress and also reinforce with staff the need to make sure he's wearing mittens and a hat when it is 9 degrees outside.

Last week it was dangerously cold here and my brother couldn't understand why he wasn't able to go outside in a t-shirt and jeans...but with individualized positive reinforcement and consistency we were able to get through this year's deep freeze without any medical emergencies.

cathyherard 5 pts

Oh gosh, this is crazy! I saw the link on Twitter and clicked because I have a kiddo who would wear shorts and t-shirts all year round(we live in Maine) and it gets freakin cold, but once I clicked and saw the other connection of autism, I was floored! Makes me wonder if you are on to something....