World Lupus Day 2012

 

WORLD LUPUS DAY

 

Today is World Lupus Day.

On this day lupus organizations and their supporters around the globe, call for increases in public and private sector funding for medical research on lupus, targeted education programs for health professionals, patients and the public, and worldwide recognition of lupus as a significant public health issue.

This matter is close to my heart.

I have lupus and my late father also had the disease. Lupus has affected my life greatly.

I was very ill for many years, and although I’m much better now, it still is a debilitating factor in my life and something I have to deal with every day.

My father had the illness for decades before was finally diagnosed correctly. I was also ill for many years before diagnosis, and I had to hear many versions of "it's all in your head" before I became dangerously sick and it became obvious that something was really wrong.

This is unfortunately typical. Lupus is hard to diagnose correctly and there is still not nearly enough knowledge about the disease, even among health professionals.

You can read about lupus (the full name is systemic lupus erythematosus) here and here for example.

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